This website has been maintained by SERN through a cooperative agreement funded by HRSA. Funding for this project has been discontinued, and thus this website will be ending on 5/31/24.

Some website content will be available in other locations, to be announced.

Family

What to Expect From a Telehealth Visit

Provide patients with information on what to expect during your telehealth visit

TeleWhat? An Introduction to Telegenetics

This infographic provides in-depth information to families about telegenetics.

Preparing for a Successful Telehealth Visit Checklist

This checklist helps families prepare for a telemedicine visit.

Preparing for a Successful Telehealth Visit Worksheet

This worksheet helps families prepare for a telemedicine visit.

Introduction to Healthcare Through Telemedicine

A 3-part video series, in both English and Spanish, by the Midwest Regional Genetics Network.

Genetic Services Video

Spanish Interpreter Video

Pamela Arn, MD — Genetics Clinic in the 21st Century (SERN/SERGG 2014)

Joseph Bocchini, PhD — Update on Activities of the Secretary’s (Discretionary) Advisory Committee on Heritable Disorders in Newborns and Children (SERN/SERGG 2013)

Dr. Bochinni presents on SACHDNC activities.

Cynthia Hinton, MS, MPH, PhD — Newborn Screening for Critical Congenital Heart Disease (SERN/SERGG 2012)

Dr. Hinton presents on newborn screening for critical congenital heart disease.

Olaf Bodamer, MD, PhD, FCCMG — Newborn Screening in the Genomic Era (SERN/SERGG 2014)

Alex Kemper, MD, MS, MPH — The SACHDNC Approach to Considering Conditions for Newborn Screening (SERN/SERGG 2013)

Dr. Kemper presents on the SACHDNC approach to considering conditions for newborn screening (NBS).

Hans Andersson, MD — Telegenetics in SERC (SERN/SERGG 2013)

Dr. Andersson presents on Telegenics activities in SERC.

Meg Comeau, MHA — The Affordable Care Act: Implications for Newborn Screening and Children with Genetic Conditions (SERN/SERGG 2013)

Meg Comeau presents on the ACA.

Rena Brewer, RN, MA — Overcoming Barriers to Implementing Telegenetic Services (SERN/SERGG 2013)

Ms. Brewer presents on barriers to implementing telegentic services.

Melissa Wasserstein, MD — Lysosomal Storage Diseases: A Pilot NBS and Examination of the Associated Ethical, Legal and Social Issues (SERN/SERGG 2013)

Dr. Wasserstein presents on Lysosomal Storage Diseases.

Joan Scott, CGC, MS — Updates from the Genetic Services Branch, MCHB (SERN/SERGG 2014)

Updates from the Genetic Services Branch, MCHB.

Beth Tarini, MD, MS — The Challenge of Integrating Genetics Into Primary Care Pediatrics – Can We Get the Camel Through the Eye of the Needle? (SERN/SERGG 2014)

Michael Watson, PhD, FACMG — National Coordinating Center (NCC) Update (SERN/SERGG 2014)

Dr. Watson provides an update on NCC activities.

Janet Hess, DrPH, MPH, CHES — FloridaHATS: Building Bridges from Pediatric to Adult Care (SERN/SERGG 2014)

Dr. Janet Hess presents, FloridaHATS: Building Bridges from Pediatric to Adult Care.