This website has been maintained by SERN through a cooperative agreement funded by HRSA. Funding for this project has been discontinued, and thus this website will be ending on 5/31/24.

Some website content will be available in other locations, to be announced.

Emergency Preparedness

Emergency Preparedness Toolkit

Included in this document are disorder-specific lists of supplies needed in case of emergency, as well as a general list of basic emergency preparedness supplies.

Emergency Preparedness Resources for Patients and Genetic Providers

The National Coordinating Center has consolidated a list of resources developed by the various Regional Genetic Networks, Telehealth Resource Centers, the Centers for Disease Control and Prevention, and Family Voices

SERN Emergency Medical Food Access Fact Sheet

Following the onset of the COVID-19 pandemic, this fact sheet was developed to provide patients with a list of contact information from metabolic formula companies and family organizations in the metabolic community.