Advocacy

Long-term Care Planning for Children with Complex Healthcare Needs

Discusses estate planning for children with complex healthcare needs

Educational Videos | Resources | Advocacy | Community Engagement | estate planning | Family | Genetic Disorders | Professional | rare diseases

Heidi Wallis – The Role of Families in Advancing Newborn Screening (SERN/SERGG 2022)

Discusses how families advocate for the advancement of newborn screening.

Educational Videos | Resources | SERN/SERGG Annual Meeting Videos | Advocacy | Family | newborn screening