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Advocacy

Long-term Care Planning for Children with Complex Healthcare Needs

Discusses estate planning for children with complex healthcare needs

Educational Videos | Resources | Advocacy | Community Engagement | estate planning | Family | Genetic Disorders | Professional | rare diseases

Heidi Wallis – The Role of Families in Advancing Newborn Screening (SERN/SERGG 2022)

Discusses how families advocate for the advancement of newborn screening.

Educational Videos | Resources | SERN/SERGG Annual Meeting Videos | Advocacy | Family | newborn screening

This website is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $2,400,000.00 with 0 percent financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.

© 2023 SOUTHEAST REGIONAL GENETICS NETWORK | A HRSA SUPPORTED PARTNERSHIP | GRANT #UH7MC30772