SERN | Southeast NBS & Genetics Regional Collaborative

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COVID-19 is an emerging, rapidly evolving situation.

Professionals

The Southeast Regional Genetics Network (SERN) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing professionals with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERN.  Below are links to information and resources specific to public health and medical professionals.

Personnel Directory
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
Centers Directory
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
Nutrition Management Guidelines
The Nutrition Guideline project develops nutrition guidelines for the management of genetic metabolic disorders using both evidence-based and consensus-based methods. The completed guidelines will be published on both the SERN and GMDI websites.
electronic Nutrition Genetics Academy
eGNA case conference and journal club are a series of free online educational modules providing evidence-based knowledge about nutrition management for inherited metabolic disorders.
NBS Connect
The Newborn Screening (NBS Connect) patient registry serves as an internet-based support network for parents, guardians, and individuals with inherited metabolic disorders (IMDs). NBS Connect captures and analyzes information related to IMDs in an effort to assess gaps in service, access to care and to develop best standards of practice for clinical management and connect families to research opportunities. NBS Connect strives to improve the quality of care of individuals with IMDs.
Video Presentations
Selected video presentations from Lunch and Learn series and SERN conferences.
Description URL
Short Term Follow Up Webinar: Emergency Preparedness | October 2018 https://www.newsteps.org/webinars-events/short-term-follow-webinar-emergency-preparedness-october-2018

Last Modified: May 13, 2019

News
Explore the Newborn Screening Information Center
HRSA recently unveiled the Newborn Screening Information Center, an online guide to newborn screening services. Newborn screening involves checking babies…

eGNA's Genetic Nutrition ECHO is Launching September 2020
eGNA's Genetic Nutrition ECHO is Launching September 2020We are excited to announce that the first cohort for the eGNA Genetic Nutrition ECHO has been enrolled and will…

Health and Human Services Telemedicine Hack
To support wide adoption of telemedicine, the U.S. Department of Health and Human Services (HHS), Assistant Secretary for Preparedness and…

SERN Events
<< << December 2020 >> >>
S M T W T F S

SERN Highlights
December 2020

2020 Annual Meeting for SERN/SERGG - July 16-18 in Asheville, NC

2020 Annual Meeting for SERN/SERGG - July 16-18 in Asheville, NC

The next annual SERN/SERGG meeting will be held July 16-18, 2020 at Renaissance Asheville Hotel in Asheville, NC.

More information available on the SERGG website: http://sergg.org/

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This website is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $600,000.00 with 0 percent financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.

© 2006-2017   —   SOUTHEAST REGIONAL GENETICS NETWORK   —   A HRSA SUPPORTED PARTNERSHIP   —   GRANT #UH7MC30772