SERN | Southeast NBS & Genetics Regional Collaborative

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Professionals

The Southeast Regional Genetics Network (SERN) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing professionals with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERN.  Below are links to information and resources specific to public health and medical professionals.

Personnel Directory
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
Centers Directory
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
Nutrition Management Guidelines
The Nutrition Guideline project develops nutrition guidelines for the management of genetic metabolic disorders using both evidence-based and consensus-based methods. The completed guidelines will be published on both the SERN and GMDI websites.
electronic Nutrition Genetics Academy
eGNA case conference and journal club are a series of free online educational modules providing evidence-based knowledge about nutrition management for inherited metabolic disorders.
NBS Connect
The Newborn Screening (NBS Connect) patient registry serves as an internet-based support network for parents, guardians, and individuals with inherited metabolic disorders (IMDs). NBS Connect captures and analyzes information related to IMDs in an effort to assess gaps in service, access to care and to develop best standards of practice for clinical management and connect families to research opportunities. NBS Connect strives to improve the quality of care of individuals with IMDs.
Video Presentations
Selected video presentations from Lunch and Learn series and SERN conferences.
Description URL
Short Term Follow Up Webinar: Emergency Preparedness | October 2018 https://www.newsteps.org/webinars-events/short-term-follow-webinar-emergency-preparedness-october-2018

Last Modified: May 13, 2019

SERN Highlights
July 2020

A Taste of eGNA: Now Expanding with Project ECHO

A Taste of eGNA: Now Expanding with Project ECHO

The Southeast Regional Genetics Network (SERN) is ready to launch its first Project ECHO platform for genetic disorders. Our first pilot project will focus on a multidisciplinary medical education approach focused on training genetic metabolic providers. We are currently recruiting for the Genetic Nutrition ECHO program which will launch in the fall of 2020. We hosted an ECHO methodology demonstration on Wednesday, April 29 where more than 300 genetic professionals, public health professionals, and other providers registered to learn more about Project ECHO. We had three case presenters from different institutions, active audience participation, and faculty experts who provided recommendations. If you are a genetic professional, currently seeing patients, we would like your help in completing the Genetic Nutrition ECHO Needs Assessment.

In addition, if you are interested in further educational opportunities, you will be directed to complete the Participant Interest Form after completing the needs assessment, which the ECHO team will use to enroll the first trainee cohort for the program and interested members will be provided with more details. For any further questions please contact egna@emory.edu.

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This website is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $600,000.00 with 0 percent financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.

© 2006-2017   —   SOUTHEAST REGIONAL GENETICS NETWORK   —   A HRSA SUPPORTED PARTNERSHIP   —   GRANT #UH7MC30772