|SERN Consumer Interactive Session |
If you missed the Consumer Interactive Session on "Preparing Teens for Transition to Adult Healthcare: 10 Steps for Successful Healthcare Transition," you can watch the recording by clicking here. …
|Watch the SERN Lunch and Learn Presentation |
Did you miss the Lunch and Learn session on Friday, October 18th? If so, you can watch the recorded webinar here: Duarte Galactosemia…
|2019 Annual Meeting for SERN/SERGG - July 18-20 in Asheville, NC|
The next annual SERN/SERGG meeting will be held July 18-20, 2019 at Renaissance Asheville Hotel in Asheville, NC.
More information available on the SERGG website: http://sergg.org/…
|U.S. Legislative Update: ECHO 2019 Act|
Dear ECHO Colleagues:
I’m excited to share the news that new legislation has been introduced in the United States Senate, the Expanding Capacity for Health Outcomes (ECHO) Act of 2019!
The legislation builds on the original ECHO Act of 2016 and the corresponding report from the U.S. Department of Health and Human Services (HHS) released in March of this year.
The bi-partisan measure would direct HHS to establish a grant program to evaluate, develop and expand the use of technology-enabled collaborative learning and capacity building models like Project ECHO in the U.S. You can read more about the legislation in a press release and fact sheet developed by the bill’s sponsors.
We believe this is a significant next step in an ongoing effort across our movement to work with policymakers in Congress, the Administration and in states around the country to ultimately fully integrate…
|Paper: Nutrition management guideline for propionic acidemia: An evidence- and consensus-based approach|
We are pleased to announce availability of our new peer-reviewed paper, Nutrition management guideline for propionic acidemia: An evidence- and consensus-based approach in Molecular Genetics and Metabolism.
The paper may be accessed at the link below:
|25th Annual Metabolic Camp at Emory University|
We have launched our crowdfunding campaign to celebrate the 25th Annual Metabolic Camp, which will take place June 17-22, 2019!
Please share the message and crowdfunding link below with your own network of family, friends, and colleagues. Help us to reach our $25,500 goal by January 24, 2019:
Donate TODAY to the 25th Annual Metabolic Camp at Emory University! Provide education to promote healthy pregnancies and prevent developmental delay that is prevalent in the PKU population. Help MetCamp reach its goal of $25,000 by January 24, 2019!http://momentum.emory.edu/EmoryMetabolic…