COVID-19 is an emerging, rapidly evolving situation.
| HRSA-21-032 Sickle Cell Disease Treatment Demonstration Program|
HRSA is accepting applications for the FY 2021 Sickle Cell Disease Treatment Demonstration Program. The goal of this program is to improve outcomes of individuals with SCD and their families by developing and supporting a regional SCD infrastructure that includes components necessary for providing comprehensive services to individuals with SCD and their families.
Application Due Date: May 3, 2021
Estimated Number of Awards: Up to 5 cooperative agreements
Estimated Award Amount: Up to $1,150,000 per year (Northeast and Southeast) or $900,000 per year (Heartland and Southwest, Pacific)
Period of Performance: September 1, 2021 through August 31, 2026
The NOFO can be accessed at:
A Technical Assistance webinar for this NOFO is scheduled for:
Friday, March 19, 2021
Time: 2-3 p.m. ET
Call-In Number: 1-866-505-4412
Participant Code: 88987753
For more information, contact Alisha Keehn at email@example.com…
| HRSA-21-036 Sickle Cell Disease Newborn Screening Follow Up Program NOFO Release|
The Health Resources and Services Administration (HRSA) is accepting applications for the fiscal year (FY) 2021 Sickle Cell Disease Newborn Screening Follow-up Program. The goal of this program is to improve health outcomes for individuals living with Sickle Cell Disease (SCD) by supporting the development of statewide and regional networks of SCD support services and leveraging the expertise of community-based organizations (CBOs) and community health workers (CHWs).
Application Due Date: April 29, 2021
Estimated Number of Awards: Up to 20 grants
Estimated Award Amount: Up to $184,000 per year
Period of Performance: September 1, 2021 – August 31, 2026
The NOFO can be accessed at:
A Technical Assistance webinar for this NOFO is scheduled for:
Wednesday, March 17, 2021
Time: 1-2 p.m. ET
Call-In Number: 1- 866-880-0834
Participant Code: 23996302
For more information, contact Hakim Fobia at HFobia@hrsa.gov.…
|Explore the Newborn Screening Information Center |
HRSA recently unveiled the Newborn Screening Information Center, an online guide to newborn screening services. Newborn screening involves checking babies for a number of serious health conditions and identifying those needing early intervention and treatment. It is the only way to detect these conditions before obvious symptoms appear or cause problems. The new resource provides background on conditions screened, the screening process and options for treatment. HRSA supports newborn screening in all states nationwide.
Explore the Newborn Screening Information Center.…
|eGNA's Genetic Nutrition ECHO is Launching September 2020|
We are excited to announce that the first cohort for the eGNA Genetic Nutrition ECHO has been enrolled and will be starting next month. This 12-week traineeship program will increase the knowledge of providers treating patients with inherited metabolic disorders. We have reached our enrollment capacity for the fall cohort, but there is still an opportunity to participate in the next session, which is scheduled to begin in Feb. 2021. To find out more information about the Genetic Nutrition ECHO, watch the video below or view the flyer for more information.…
|Health and Human Services Telemedicine Hack |
To support wide adoption of telemedicine, the U.S. Department of Health and Human Services (HHS), Assistant Secretary for Preparedness and Response is partnering with the ECHO Institute at the University of New Mexico and the Public Health Foundation’s TRAIN Learning Network to deliver a 10-week, virtual peer-to-peer learning community called Telemedicine Hack.
To register, click here. …
|A Taste of eGNA: Now Expanding with Project ECHO |
The Southeast Regional Genetics Network (SERN) is ready to launch its first Project ECHO platform for genetic disorders. Our first pilot project will focus on a multidisciplinary medical education approach focused on training genetic metabolic providers. We are currently recruiting for the Genetic Nutrition ECHO program which will launch in the fall of 2020. We hosted an ECHO methodology demonstration on Wednesday, April 29 where more than 300 genetic professionals, public health professionals, and other providers registered to learn more about Project ECHO. We had three case presenters from different institutions, active audience participation, and faculty experts who provided recommendations. If you are a genetic professional, currently seeing patients, we would like your help in completing the Genetic Nutrition ECHO Needs Assessment.
In addition, if you are interested in further educational opportunities, you will be directed to complete the Participant Interest…
|COVID-19 Updated Resources for Southeast Region|
Please find below current details and information regarding Telemedicine and COVID-19
SERN Emergency Medical Food Access Fact Sheet
Up to date information on the coronavirus: https://www.coronavirus.gov/
Research information on the coronavirus: https://www.nih.gov/health-information/coronavirus
The Health Resources and Services Administration has developed a website for providers and patients on telehealth. You can access the website here.
Telehealth Coverage Policies in the Time of COVID-19 https://www.cchpca.org/resources/covid-19-telehealth-coverage-policies
Centers for Medicare and Medicaid Services Current Emergencies, COVID-19 https://www.cms.gov/About-CMS/Agency-Information/Emergency/EPRO/Current-Emergencies/Current-Emergencies-page
U.S. Department of Health and Human Services Telehealth Remote Communications During COVID-19 https://www.hhs.gov/hipaa/for-professionals/special-topics/emergency-preparedness/notification-enforcement-discretion-telehealth/index.html
Telehealth Videos for Patients and Providers https://www.westernstatesgenetics.org/
COVID-19 Information from the Region’s Telehealth Resource Centers
Southeast Telehealth Resource Center https://www.setrc.us/learn/overview.html
TexLa Telehealth Resource Center https://texlatrc.org/
South Central Telehealth Resource Center https://learntelehealth.org/
Mid-Atlantic Telehealth Resource Center https://www.matrc.org/matrc-telehealth-resources-for-covid-19/
Information on this page will be updated frequently. …
|Family Perspectives on Telegenetics |
If you were unable to attend the webinar on Telegenetics presented by The National Genetics Education and Family Support Center, you can find details of the recording below.
Webinar Slide Presentation
Telegenetics and Telehealth Resources
|HRSA Telehealth and COVID-19|
The Health Resources and Services Administration (HRSA) invites you to a free webinar on Telehealth and COVID-19.
Date: Monday, April 20, 2020
Time: 2:30pm - 4:00pm ET
Review current telehealth policies under COVID-19
Discuss successful telehealth approaches/models to address the unique challenges in health care delivery during the COVID-19 pandemic (e.g. Virtual Screenings and Consultations, Remote Patient Monitoring, Tele-Emergency, Tele-ICU)
Highlight technical resources to assist in the development and expansion of telehealth programs
Mei Kwong, JD, Executive Director, Center for Connected Health Policy
Dee W. Ford, MD, MSCR, Professor, Pulmonary and Critical Care Medicine, Medical University of South Carolina
Project Director, Telehealth Center of Excellence
Medical Director, Tele-ICU & ICU Innovations
Kathryn King, MD, MHS, Assistant Professor, Pediatrics, Medical University of South Carolina
Associate Project Director, Telehealth Center of Excellence
Associate Executive Medical Director, Center for Telehealth
Medical Director, School-based Telehealth
Richard L. Summers, MD, FACEP Associate Vice Chancellor for Research, University of Mississippi Medical Center
Are you implementing a telegenetics clinic? Do you need materials to help you get started? If so, you have come to the right place. Below you will find documents and links that you can use to help you get started. See the details below. More details will be added soon.
Tips for conducting a telemedicine video: https://www.westernstatesgenetics.org/
Updated policies on telemedicine during the COVID-19 outbreak: https://www.cchpca.org/resources/covid-19-telehealth-coverage-policies?utm_source=Telehealth+Enthusiasts&utm_campaign=e9dfb9c33f-EMAIL_CAMPAIGN_2020_03_20_01_02&utm_medium=email&utm_term=0_ae00b0e89a-e9dfb9c33f-353230897
Links to Telehealth Resource Centers: The Telehealth Resource Centers (TRCs) provide assistance to individuals who are currently providing or are interested in providing care to patients via telemedicine. The TRCs are divided into 12 regional and 2 national centers. Below, you will find the link to the different TRCs in the SERN and the 2 national centers.
Telehealth Resource Center
Southeast Telehealth Resource Center (SC, GA, AL, FL)
South Central Telehealth Resource Center (MS, ARK, TN)
TexLa (TX, LA)
Mid-Atlantic Telehealth Resource Center (NC,…
|Genetics Education NEwsletter: GENE|
The National Coordinating Center (NCC) is excited to announce that GENE has been launched. GENE is a quarterly newsletter that highlights educational resources developed by the seven Regional Genetics Networks (RGNs), National Genetics Education and Family Support Center (NGEFSC), and NCC. You can access GENE here: https://mailchi.mp/nccrcg/gene0320…