There have been a few pieces of federal legislation introduced that may be of interest to you. We have included links to the bill text and professional organization responses (when available) below. Access to Genetic Counselor Services Act of 2019 Bill Text (here) Professional Organization Statements/Letters NSGC (here) ASHG (here) ACMG (here) Ending the Diagnostic Odyssey Act of 2019 Bill Text (Senate: here and House: here) Advancing Access to Precision Medicine Act Bill Text (here) ... Rani H Singh PhD, RD, LD Professor Emory University Department of Human Genetics and Pediatrics 404-778-8519 rsingh@emory.edu…

The next annual SERN/SERGG meeting will be held July 16-18, 2020 at Renaissance Asheville Hotel in Asheville, NC. More information available on the SERGG website: http://sergg.org/…

If you missed the Consumer Interactive Session on "Preparing Teens for Transition to Adult Healthcare: 10 Steps for Successful Healthcare Transition," you can watch the recording by clicking here.  …

Did you miss the Lunch and Learn session on Friday, October 18th? If so, you can watch the recorded webinar here: Duarte Galactosemia…

The next annual SERN/SERGG meeting will be held July 18-20, 2019 at Renaissance Asheville Hotel in Asheville, NC. More information available on the SERGG website: http://sergg.org/…

Dear ECHO Colleagues: I’m excited to share the news that new legislation has been introduced in the United States Senate, the Expanding Capacity for Health Outcomes (ECHO) Act of 2019! The legislation builds on the original ECHO Act of 2016 and the corresponding report from the U.S. Department of Health and Human Services (HHS) released in March of this year. The bi-partisan measure would direct HHS to establish a grant program to evaluate, develop and expand the use of technology-enabled collaborative learning and capacity building models like Project ECHO in the U.S. You can read more about the legislation in a press release and fact sheet developed by the bill’s sponsors. We believe this is a significant next step in an ongoing effort across our movement to work with policymakers in Congress, the Administration and in states around the country to ultimately fully integrate…

We are pleased to announce availability of our new peer-reviewed paper, Nutrition management guideline for propionic acidemia: An evidence- and consensus-based approach in Molecular Genetics and Metabolism.  The paper may be accessed at the link below: https://www.sciencedirect.com/science/article/pii/S1096719218303421?via%3SERN…