The annual meeting of the Southeast Regional Genetics Network (SERN) and the 38th Annual Meeting of the Southeastern Regional Genetics Group will be held virtually:  Friday, July 16, 2021  4-6:30 pm  Registration is now open! There is no fee to attend this year's meeting and the meeting link will be emailed to all registrants closer to the meeting.  Do you have a research project that you would like to highlight? Submit an abstract to present your poster. The deadline to submit is May 21.    We will have breakout rooms for clinicians, consumers, genetic counselors, metabolic dietitians, and other healthcare professionals.     …

HRSA developed two fact sheets to help both patients and providers better understand their rights and responsibilities regarding access to COVID-19 vaccines. The COVID-19 vaccines are free to all individuals living in the United States and these resources will help to empower patients and educate providers on this fact.   Fact Sheets can be found in English and Spanish: Patient Fact Sheet (English | Spanish) Provider Fact Sheet (English | Spanish)…

Join us for a webinar, presented by Family Voices, CT KASA, and Youth as Self Advocates (YASA - a program of Family Voices) as we launch youth-facing tools on the topic of Telehealth!  Youth from CT KASA and YASA will speak on what it was like to collaborate to create 2 videos and 2 social stories on the topics of “Steps for a Successful Telehealth Visit” and “Caring for Your Mental Health” all while utilizing virtual platforms. These tools will be available to download from the Family Voices Telehealth Website for your use and dissemination!   When: April 20, 2021, at 4 pm ET  Register Here…

The Health Resources and Services Administration (HRSA) is accepting applications for the fiscal year (FY) 2021 Long-term Follow-up for Severe Combined Immunodeficiency and Other Newborn Screening Conditions Program. The goal of this program is to ensure that newborns and children identified through newborn screening (NBS) achieve the best possible outcomes, by expanding the ability of state public health agencies to provide screening, counseling and services to these newborns and children. This NOFO supports this goal by making available funding to support comprehensive models of long-term follow-up (LTFU) that demonstrate collaborations between clinicians, public health agencies, and families.   Application Due Date:  May 03, 2021 Estimated Number of Awards:  Up to 6 grants Estimated Award Amount:  Up to $ $500,000 per year Period of Performance:  August 1, 2021 – July 31, 2023   The NOFO can be accessed at: https://www.grants.gov/web/grants/view-opportunity.html?oppId=331850   A Technical Assistance webinar for this NOFO is scheduled for: Thursday,…

HRSA-21-085 State Newborn Screening Interoperability Implementation Program The Health Resources and Services Administration (HRSA) is accepting applications for the fiscal year (FY) 2021 State Newborn Screening Interoperability Implementation Program. The goal of the program is to support states in implementing activities towards achieving full data interoperability relating to newborns and children having or at risk for heritable disorders identified through newborn screening.   Application Due Date:  May 10, 2021 Estimated Number of Awards:  Up to 4 cooperative agreements Estimated Award Amount:  Up to $200,000.00 per year Period of Performance:  September 1, 2021 – August 31, 2023   The NOFO can be accessed at: https://www.grants.gov/web/grants/view-opportunity.html?oppId=331851     A Technical Assistance webinar for this NOFO is scheduled for: Thursday, April 8, 2021 Time: 2-3 p.m. ET Call-In Number: 1-866-253-5305 Participant Code: 53556179 Weblink: https://hrsa.connectsolutions.com/hrsa21085/   For more information, contact Kim Morrison at KMorrison@hrsa.gov .…

HRSA is accepting applications for the FY 2021 Sickle Cell Disease Treatment Demonstration Program.  The goal of this program is to improve outcomes of individuals with SCD and their families by developing and supporting a regional SCD infrastructure that includes components necessary for providing comprehensive services to individuals with SCD and their families.   Application Due Date: May 3, 2021 Estimated Number of Awards: Up to 5 cooperative agreements Estimated Award Amount: Up to $1,150,000 per year (Northeast and Southeast) or $900,000 per year (Heartland and Southwest, Pacific) Period of Performance: September 1, 2021 through August 31, 2026   The NOFO can be accessed at: https://www.grants.gov/web/grants/view-opportunity.html?oppId=331673   A Technical Assistance webinar for this NOFO is scheduled for: Friday, March 19, 2021 Time: 2-3 p.m. ET Call-In Number: 1-866-505-4412 Participant Code: 88987753 Weblink: https://hrsa.connectsolutions.com/hrsa21032/   For more information, contact Alisha Keehn at akeehn@hrsa.gov…

The Health Resources and Services Administration (HRSA) is accepting applications for the fiscal year (FY) 2021 Sickle Cell Disease Newborn Screening Follow-up Program.  The goal of this program is to improve health outcomes for individuals living with Sickle Cell Disease (SCD) by supporting the development of statewide and regional networks of SCD support services and leveraging the expertise of community-based organizations (CBOs) and community health workers (CHWs).   Application Due Date:  April 29, 2021 Estimated Number of Awards:  Up to 20 grants Estimated Award Amount:  Up to $184,000 per year Period of Performance:  September 1, 2021 – August 31, 2026   The NOFO can be accessed at: https://www.grants.gov/web/grants/view-opportunity.html?oppId=328460   A Technical Assistance webinar for this NOFO is scheduled for: Wednesday, March 17, 2021 Time: 1-2 p.m. ET Call-In Number: 1- 866-880-0834 Participant Code: 23996302 Weblink: https://hrsa.connectsolutions.com/hrsa21036/   For more information, contact Hakim Fobia at HFobia@hrsa.gov.…

HRSA recently unveiled the Newborn Screening Information Center, an online guide to newborn screening services. Newborn screening involves checking babies for a number of serious health conditions and identifying those needing early intervention and treatment. It is the only way to detect these conditions before obvious symptoms appear or cause problems. The new resource provides background on conditions screened, the screening process and options for treatment. HRSA supports newborn screening in all states nationwide. Explore the Newborn Screening Information Center.…

We are excited to announce that the first cohort for the eGNA Genetic Nutrition ECHO has been enrolled and will be starting next month. This 12-week traineeship program will increase the knowledge of providers treating patients with inherited metabolic disorders. We have reached our enrollment capacity for the fall cohort, but there is still an opportunity to participate in the next session, which is scheduled to begin in Feb. 2021. To find out more information about the Genetic Nutrition ECHO, watch the video below or view the flyer for more information.…

To support wide adoption of telemedicine, the U.S. Department of Health and Human Services (HHS), Assistant Secretary for Preparedness and Response is partnering with the ECHO Institute at the University of New Mexico and the Public Health Foundation’s TRAIN Learning Network to deliver a 10-week, virtual peer-to-peer learning community called Telemedicine Hack. To register, click here. …