Please find below current details and information regarding Telemedicine and COVID-19  SERN Emergency Medical Food Access Fact Sheet  https://southeastgenetics.org/covid_fact_sheet.php Centers for Medicare and Medicaid Services Current Emergencies, COVID-19 https://www.cms.gov/About-CMS/Agency-Information/Emergency/EPRO/Current-Emergencies/Current-Emergencies-page Telehealth Coverage Policies in the Time of COVID-19 https://www.cchpca.org/resources/covid-19-telehealth-coverage-policies Telehealth Videos for Patients and Providers              https://www.westernstatesgenetics.org/ COVID-19 Information from the Region’s Telehealth Resource Centers Southeast Telehealth Resource Center https://www.setrc.us/learn/overview.html TexLa Telehealth Resource Center https://texlatrc.org/ South Central Telehealth Resource Center https://learntelehealth.org/ Mid-Atlantic Telehealth Resource Center https://www.matrc.org/matrc-telehealth-resources-for-covid-19/ Information on this page will be updated frequently. …

Are you implementing a telegenetics clinic? Do you need materials to help you get started? If so, you have come to the right place. Below you will find documents and links that you can use to help you get started. See the details below. More details will be added soon.  Tips for conducting a telemedicine video: https://www.westernstatesgenetics.org/ Updated policies on telemedicine during the COVID-19 outbreak: https://www.cchpca.org/resources/covid-19-telehealth-coverage-policies?utm_source=Telehealth+Enthusiasts&utm_campaign=e9dfb9c33f-EMAIL_CAMPAIGN_2020_03_20_01_02&utm_medium=email&utm_term=0_ae00b0e89a-e9dfb9c33f-353230897   Links to Telehealth Resource Centers: The Telehealth Resource Centers (TRCs) provide assistance to individuals who are currently providing or are interested in providing care to patients via telemedicine. The TRCs are divided into 12 regional and 2 national centers. Below, you will find the link to the different TRCs in the SERN and the 2 national centers.  Telehealth Resource Center Website Southeast Telehealth Resource Center (SC, GA, AL, FL) http://learntelehealth.org/ South Central Telehealth Resource Center (MS, ARK, TN) http://learntelehealth.org/ TexLa (TX, LA) http://www.texlatrc.org/ Mid-Atlantic Telehealth Resource Center (NC,…

The National Coordinating Center (NCC) is excited to announce that GENE has been launched. GENE is a quarterly newsletter that highlights educational resources developed by the seven Regional Genetics Networks (RGNs), National Genetics Education and Family Support Center (NGEFSC), and NCC. You can access GENE here: https://mailchi.mp/nccrcg/gene0320…

The next annual SERN/SERGG meeting will be held July 16-18, 2020 at Renaissance Asheville Hotel in Asheville, NC. More information available on the SERGG website: http://sergg.org/…

The next annual SERN/SERGG meeting will be held July 16-18, 2020 at Renaissance Asheville Hotel in Asheville, NC. More information available on the SERGG website: http://sergg.org/…

There have been a few pieces of federal legislation introduced that may be of interest to you. We have included links to the bill text and professional organization responses (when available) below. Access to Genetic Counselor Services Act of 2019 Bill Text (here) Professional Organization Statements/Letters NSGC (here) ASHG (here) ACMG (here) Ending the Diagnostic Odyssey Act of 2019 Bill Text (Senate: here and House: here) Advancing Access to Precision Medicine Act Bill Text (here) ... Rani H Singh PhD, RD, LD Professor Emory University Department of Human Genetics and Pediatrics 404-778-8519 rsingh@emory.edu…

If you missed the Consumer Interactive Session on "Preparing Teens for Transition to Adult Healthcare: 10 Steps for Successful Healthcare Transition," you can watch the recording by clicking here.  …

Did you miss the Lunch and Learn session on Friday, October 18th? If so, you can watch the recorded webinar here: Duarte Galactosemia…

Dear ECHO Colleagues: I’m excited to share the news that new legislation has been introduced in the United States Senate, the Expanding Capacity for Health Outcomes (ECHO) Act of 2019! The legislation builds on the original ECHO Act of 2016 and the corresponding report from the U.S. Department of Health and Human Services (HHS) released in March of this year. The bi-partisan measure would direct HHS to establish a grant program to evaluate, develop and expand the use of technology-enabled collaborative learning and capacity building models like Project ECHO in the U.S. You can read more about the legislation in a press release and fact sheet developed by the bill’s sponsors. We believe this is a significant next step in an ongoing effort across our movement to work with policymakers in Congress, the Administration and in states around the country to ultimately fully integrate…

We are pleased to announce availability of our new peer-reviewed paper, Nutrition management guideline for propionic acidemia: An evidence- and consensus-based approach in Molecular Genetics and Metabolism.  The paper may be accessed at the link below: https://www.sciencedirect.com/science/article/pii/S1096719218303421?via%3SERN…