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Medical Foods Coverage Survey
Medical Foods Coverage Survey  

The Medical Foods Coverage Survey was created to assess the gaps in legislation for coverage of medical foods (formula), modified low-protein foods, and nutraceuticals across the US, as well as other methods of coverage used in each state.  Methods of obtaining these items and detailed statements of exclusions of coverage were also collected. 

This data was initially gathered through phone interviews with state representatives and clinicians and has been summarized in the regional and state summary sheets.

Last Modified: Oct 12, 2017

Medical Foods Surveys - Select a State  
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SERN Highlights
December 2018

National PKU Alliance: Schedule In-District Meetings NOW!

Schedule In-District Meetings NOW!

Members of Congress will be working locally May 28 - June 1. Please schedule a meeting with them in your home state to discuss the Medical Nutrition Equity Act (Senate Bill: S. 1194 and House Bill: H.R. 2587). Asking for their support and co-sponsorship locally is KEY. Did you know Senator Grassley agreed to co-lead the MNEA with Senator Casey after a local meeting with two PKU grandparents? He did! Local meetings make a difference. Don't delay, WE NEED YOUR HELP!

Scheduling a meeting is easy! Check out the NPKUA Medical Nutrition Equity Act page for step-by-step instructions. You can also go directly to our phone scripts by selecting the links below.

YOU CAN DO IT!

Help the NPKUA keep a pulse on advocacy activities across the country. Please email katrina.swenson@npkua.org to let us know about your appointments. We can also connect you with other advocates in your area!

What do I do if I'm told my Representative or Senators do not have appointments available? Let the scheduler know this issue is very important to you and you would like to meet with a local staff member responsible for healthcare legislation in the next several weeks.

Need more bill info and materials to share with your U.S. Representative and Senators? Visit the NPKUA Medical Nutrition Equity Act page!

Have questions? We have answers! Email us!

About the Medical Nutrition Equity Act

If passed by Congress and signed into law, the MNEA would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs to provide coverage for formulas, low protein modified foods, and prescribed vitamins for all children and adults with inborn errors of metabolism and certain digestive disorders.

Thank you for your participation!

National PKU Alliance, Inc. | P.O. Box 1872 | Eau Claire, WI 54702

katrina.swenson@npkua.org | http://www.npkua.org

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