Tara Britt – How Policy Impacts Rare Disease (SERN/SERGG 2022)
Presenter(s): Tara Britt
Keywords: Policy, Rare Diseases, Newborn ScreeningSERN/SERGG 2022 Annual Meeting
Overview of the Rare Disease Advisory Council (RDAC) and how families can get involved in their state’s organization.
Date: Thursday, July 14, 2022
Length: 16:28