This website has been maintained by SERN through a cooperative agreement funded by HRSA. Funding for this project has been discontinued, and thus this website will be ending on 5/31/24.

Some website content will be available in other locations, to be announced.

Get Involved – Families

The Consumer Alliance group of passionate parents, patients, caregivers, and advocates across the Southeast represent an array of rare genetic disorders. We invite you to participate in our SERN/SERGG annual meeting, patient summits, consumer focus groups, and more.

Join Consumer Alliance Email List


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Join us at the Annual Meeting


2021 SERN/SERGG Annual Meeting

The 2021 SERN/SERGG Annual Meeting will be held July 15-17, 2021. The meeting will be held virtually, due to COVID-19.

2022 SERN/SERGG Annual Meeting

The 2022 Annual Meeting was held in Asheville, NC July 14-16, 2022. Presentations from the telemedicine workgroup, platform sessions, and consumer breakout sessions were recorded. 2022 SERN/SERGG Presentations

View all Annual Meetings

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