SERN | Southeast NBS & Genetics Regional Collaborative

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Amy C Cunningham, MS, RD, LDN

Amy C Cunningham, MS, RD, LDN   
Contact Information
(504) 988-2989 Main Office

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Clinical Faculty
Metabolic Dietitian

Primary Job Title
Metabolic Nutritionist

Centers & Contact Information
Amy Cunningham is the senior Metabolic Nutritionist with the Hayward Genetics Center at Tulane University School of Medicine. She is a Licensed and Registered Dietitian and holds an MS in nutrition with a minor in biochemistry. As part of the Tulane clinical genetics team, she coordinates dietary treatment for children and adults with inherited metabolic disease, and participates in Hayward research projects and teaching programs. Amy is a Founding Board member, and Past President of Genetic Metabolic Dietitians International (GMDI). She is co-chair of the PKU Workgroup for the joint GMDI and SERC Genetics and Newborn Screening Collaborative project to develop evidenced-based treatment guidelines for metabolic diseases. She is a past board member of the Southeastern Regional Genetics Group (SERGG), a member of the Society for Inherited Metabolic Disorders (SIMD), and is past chair of the ADA specialty practice group for inborn errors of metabolism. She has contributed to initiatives at the federal level: a NORD/GMDI effort to enhance access to metabolic treatment components, an ACMG workgroup to develop ACT Sheets for age transitioning patients, and an NIH review of the state of the science in PKU. She sits on advisory boards for BioMarin and Merck pharmaceutical companies.

Areas of Expertise

Coordination of nutrition therapy for children and adults with inherited metabolic diseases – full range of disease syndromes



Selected Publications
Cunningham A, Bausell H, Brown M, Chapman M, DeFouw K, Ernst S, McClure J, McCune H, O'Steen D, Pender A, Skrabal J, Wessel A, Jurecki E, Shediac R, Prasad S, Gillis J, Cederbaum S. Recommendations for the use of sapropterin in phenylketonuria. Mol Genet Metab. 2012 Jul;106(3):269-76. doi: 10.1016/j.ymgme.2012.04.004. Epub 2012 Apr 13.PMID:22575621   Bettiol,E, Marant,C, Burlna,A, Cunningham, A, Gasteyger,C, Benmedjahed,K, Abetz,L, Champigneulle,A: International Development of Disease-specific Questionnaires to Assess the Impact of Phenylketonuria and Its Treatment on Daily Life: Qualitative Steps. Poster presentation at 2010 SSIEM conference, Istanbul, Turkey   Cunningham,A, Pridjian,G, Andersson,HC: PKU Treatment With Tetrahydrobiopterin (Sapropterin) During Pregnancy. Poster presentation, American Society of Human Genetics conference 2008, updated at International Congress of Inborn Errors of Metabolism, 2009.

Nutrition Management Guidelines Activity
2008 - Present

SERN Highlights
July 2020

A Taste of eGNA: Now Expanding with Project ECHO

A Taste of eGNA: Now Expanding with Project ECHO

The Southeast Regional Genetics Network (SERN) is ready to launch its first Project ECHO platform for genetic disorders. Our first pilot project will focus on a multidisciplinary medical education approach focused on training genetic metabolic providers. We are currently recruiting for the Genetic Nutrition ECHO program which will launch in the fall of 2020. We hosted an ECHO methodology demonstration on Wednesday, April 29 where more than 300 genetic professionals, public health professionals, and other providers registered to learn more about Project ECHO. We had three case presenters from different institutions, active audience participation, and faculty experts who provided recommendations. If you are a genetic professional, currently seeing patients, we would like your help in completing the Genetic Nutrition ECHO Needs Assessment.

In addition, if you are interested in further educational opportunities, you will be directed to complete the Participant Interest Form after completing the needs assessment, which the ECHO team will use to enroll the first trainee cohort for the program and interested members will be provided with more details. For any further questions please contact

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