Yetsa Osara provides technical assistance to the PD and is responsible for overseeing the strategic planning, monitoring progress towards achieving goals, responding to progress reports, and assisting with communication materials. She is also responsible for facilitating regional activities with the national efforts of the NCC and the Maternal and Child Health Bureau of HRSA. She has a proven track record of successfully working with cross functional and geographically dispersed teams to complete both long and short-term project goals. She has extensive experience in providing expertise and guidance in managing the day-to-day activities of grant-funded research projects, and brings a wealth of knowledge in running global disease registries, developing health promotion best practices (both evidence and consensus-based), data evaluation, partnering with parent organizations, industry professionals, government agencies and domain experts to improve systems and increase project efficiency.
Certified Project Management Professional (PMP)
MPH (Epidemiology) Drexel University, PA
BS (Biology) Kennesaw State University. GA
Kenneson A, Osara Y
, Pringle T, Youngborg L, Singh RH. Natural History of Children and Adults with Maple Syrup Urine Disease in the NBS-MSUD Connect Registry. Molecular Genetics and Metabolism Reports. 2018 (Accepted for Publication)
Osara Y, Coakley K, Deverajan A, Singh RH. Development of Newborn Screening Connect (NBS Connect): A self-reported patient registry and its role in improvement of care for patients with inherited metabolic disorders. Orphanet Journal of Rare Diseases. 2017, Jul; 12(1):132.
Osara Y, Coakley K, Aisthorpe A, Stembridge A, Quirk M, Splett P, Rohr F, Singh RH. The role of evidence analysts in creating nutrition management guidelines for inherited metabolic disorders. Journal of Evaluation in Clinical Practice. 2015, Dec; 21(6), p.1235-43.
Devarajan A, Osara Y, Harmond L, Singh RH. Evaluation of awareness about healthcare transition among children and young adults at the Annual Emory Metabolic camp. Therapeutic Innovation & Regulatory ScienceJournal. 2013, Nov; 46(6):728-9.
Kalman L, Leonard J, Gerry N, Tarleton J, Bridges C, Gastier-Foster JM, Pyatt RE, Stonerock E, Johnson MA, Richards CS, Schrijver I, Ma T, Miller VR, Adadevoh Y, Furlong P, Beiswanger C, Toji L. Quality assurance for Duchenne and Becker muscular dystrophy genetic testing: development of a genomic DNA reference material panel. The Journal of Molecular Diagnostics. 2011 Mar; 13(2):167-74. (Nominated for demonstrating excellence in science as a candidate for the Charles C. Shepard Science Award in Laboratory Science. June 2012)