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Fran Rohr, MS, RD

Fran Rohr, MS, RD   

Primary Job Title
Clinical Nutrition Specialist

Centers & Contact Information
Fran Rohr, MS, RD, LDN, is a clinical nutritionist Boston Children’s Hospital where she has worked for over 30 years. Her graduate and dietetics education was done at Tufts University and Frances Stern Nutrition Center in Boston. Fran is one of the Founders of GMDI is a Past President. Her clinical research interests relate mainly to PKU, maternal PKU and galactosemia. She has been a consultant to the American Academy of Pediatrics, PKU News, and several companies including Mead Johnson, Abbott, Nutricia and BioMarin.

Areas of Expertise

Inborn Errors of Metabolism


BS University of Maine
MS Tufts University

Selected Publications
Batey LA, Welt CK, Rohr F, Wessel A, Anastasoaie V, Feldman HA, Guo CY, Rubio-Gozalbo E, Berry G, Gordon CM. Skeletal health in adult patients with classic galactosemia. Osteoporos Int. 2013 Feb;24(2):501-9

Singh RH, Rohr F, Splett PL. Bridging evidence and consensus methodology for inherited metabolic disorders: creating nutrition guidelines. J Eval Clin Pract. 2011 Dec 13. doi: 10.1111/j.1365-2753.2011.01807]

Thompson S, Rohr FJ. Alternative Therapies in Phenylketonuria. Topics in Clinical Nutrition. 24(4):322-332, October/December 2009

Nutrition Management Guidelines Activity
2008 - Present

SERN Highlights
April 2019

2019 Annual Meeting for SERN/SERGG - July 18-20 in Asheville, NC

2019 Annual Meeting for SERN/SERGG - July 18-20 in Asheville, NC

The next annual SERN/SERGG meeting will be held July 18-20, 2019 at Renaissance Asheville Hotel in Asheville, NC.

More information available on the SERGG website:

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