A Parent's Guide to Newborn Screening
In a gentle, warm and supportive context, A Parent's Guide to Newborn Screening explains what newborn screening is, its purpose, the test procedure, and what parents need to do if retesting is necessary:
A Parents Guide to Newborn Screening
Una guoa para pacientes sobre las pruebas
de diagnostico para los recion nacidos
Brought to you by:
For more information contact the March of Dimes.
Consumer Alliance Workgroup
Read about and become involved with activities led by the Consumer Alliance Workgroup.
The Emergency Preparedness Toolkit for Genetic-Based Inherited Metabolic Disorders was developed by the SERN Consumer Alliance Emergency Preparedness Workgroup. The toolkit includes disorder-specific lists of supplies needed in case of emergency, as well as a general list of basic emergency preparedness supplies. It is available to be printed, posted, and shared: http://southeastgenetics.org/ept/