SERN | Southeast NBS & Genetics Regional Collaborative

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Resources for Patients and Families

The Southeast Regional Genetics Network (SERN) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing patients and families with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERC.  Below are links to information and resources specific to patients with genetic disorders and their families. 


Consumer Alliance
Workgroup

Consumer Alliance
Mailing List

Genetic Disorders

News and Events
 

Centers Directory

Personnel Directory

NBS Connect

Volunteer Opportunities
 

SERN/SERGG Annual Meeting
 
A Parent's Guide to Newborn Screening

In a gentle, warm and supportive context, A Parent's Guide to Newborn Screening explains what newborn screening is, its purpose, the test procedure, and what parents need to do if retesting is necessary:

A Parents Guide to Newborn Screening

Una guoa para pacientes sobre las pruebas
de diagnostico para los recion nacidos

Brought to you by:
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For more information contact the March of Dimes.

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Consumer Alliance Workgroup

Read about and become involved with activities led by the Consumer Alliance Workgroup.

 

Emergency Preparedness ToolkitThe Emergency Preparedness Toolkit for Genetic-Based Inherited Metabolic Disorders was developed by the SERN Consumer Alliance Emergency Preparedness Workgroup. The toolkit includes disorder-specific lists of supplies needed in case of emergency, as well as a general list of basic emergency preparedness supplies. It is available to be printed, posted, and shared:  http://southeastgenetics.org/ept/

SERN is proud to be partnered with
Genetic Alliance

Last Modified: Jun 27, 2018

SERN Highlights
October 2019

SERN Lunch and Learn Announcement Friday, October 18, 2019

Please join us on Friday, October 18, 2019,at 12:00 pm (noon) in the

7th Floor Conference Room

Woodruff Memorial Research Building

101 Woodruff Circle  

for our

SERN Lunch and Learn Series.

A flyer is attached for your review.

Our speaker will be:

Judith Fridovich-Keil, PhD

Professor

Emory University

School of Medicine

Department of Human Genetics

The title of her presentation is:

“Rethinking Duarte Galactosemia”

Pizza will be provided

Please RSVP by Friday, October 11th to theresa.pringle@emory.edu  

Live presentation via internet is available.

Email astembr@emory.edu and theresa.pringle@emory.edu

 for web reservations.

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© 2006-2017   —   SOUTHEAST REGIONAL GENETICS NETWORK   —   A HRSA SUPPORTED PARTNERSHIP   —   GRANT #UH7MC30772