Novel technologies have been recently developed to simply and inexpensively communicate across the internet. These technologies have improved our ability to communicate among regional collaborators, and enabled telemedicine outreach clinics and inpatient consultations convenient and effective. Ultimately, the technologies hold the promise removing the barrier of distance in access to genetic care and minimize the problem of insufficient numbers of genetic services professionals by making access to their expertise available to larger numbers of patients without respect to geography. The Telecommunication/Telemedicine Workgroup was formed to investigage the use of these technologies and to identifiy ways of implementing their use for improved patient care.
Rani Singh, PhD, RD, LD (Project Director, HRSA Grant)
Hans Andersson, MD (Co-Project Director, HRSA Grant)
Telemedicine Workgroup Activities
Every Third Thursday of the Month beginning February 2018
SERN/SERGG Annual Meeting July 18-20, 2018
Renaissance Asheville Hotel
Links to the Different Telehealth Resource Centers: The Telehealth Resource Centers (TRCs) provide assistance to individuals who are currently providing or are interested in providing care to patients via telemedicine. The TRCs are divided into 12 regional and 2 national centers. Below, you will find the link to the different TRCs in the SERN and the 2 national centers.
Southeast Telehealth Resource Center (SC, GA, AL, FL): http://www.setrc.us/
South Central Telehealth Resource Center (MS, ARK, TN): http://learntelehealth.org/
TexLa (TX, LA): http://www.texlatrc.org/
Mid-Atlantic Telehealth Resource Center (NC, VA, KY, WV, PA, MD, DE, DC, NJ): https://www.matrc.org/
National Policy Center: https://www.cchpca.org/
National Technology Center: http://www.telehealthtechnology.org/
Paper: Nutrition management guideline for propionic acidemia: An evidence- and consensus-based approach
We are pleased to announce availability of our new peer-reviewed paper, Nutrition management guideline for propionic acidemia: An evidence- and consensus-based approach in Molecular Genetics and Metabolism.
The paper may be accessed at the link below: