The National Coordinating Center has consolidated a list of resources developed by the various Regional Genetic Networks, Telehealth Resource Centers, the Centers for Disease Control and Prevention, and Family Voices
Following the onset of the COVID-19 pandemic, this fact sheet was developed to provide patients with a list of contact information from metabolic formula companies and family organizations in the metabolic community.
A PDF compiled by Michael Edwards, PhD, Northeast Telehealth Resource Center, January 28, 2021.
A list of current telemedicine peer-reviewed articles developed by the Northeast Telehealth Resource Center
This checklist helps families prepare for a telemedicine visit.
This worksheet helps families prepare for a telemedicine visit.