How Policy Impacts Rare Disease (SERN/SERGG 2022)

Overview of the Rare Disease Advisory Council (RDAC) and how families can get involved in their state’s organization. Find Your State’s RDAC

July – September 2022 Quarterly Newsletter

Florida Family Leader Network: 5th Annual Summit

The Florida Family Leader Network is hosting its 5th annual summit on “Leveraging Literacy Tools” on September 14-16, 2022 in Tampa, FL.   The Florida Family Leader’s Network is a … More →

What is genetic testing? Video in Spanish

Overview of genetic testing. The video is in Spanish with subtitles.

Genetics Visit FAQs

This handout provides answers to frequently asked questions about a genetics visit and what to expect.   Genetics Visit FAQ in English  Genetics Visit FAQ in Spanish 

September 2022 Lunch and Learn

SERN will be hosting our next Lunch and Learn on Friday, September 30 at 12 pm ET via Zoom. Register online to watch live or to receive the link to … More →

Medical Necessity Webinar – Part 3

Medical Necessity Webinar Series from the National Coordinating Center for the Regional Genetics Networks (NCC) and the Catalyst Center Interested in learning more about what medical necessity is and how … More →

Public Health Genetics Week

Public Health Genetics Week is May 23-27, 2022 #PHGW #PublicHealthGenetics The National Coordinating Center for the Regional Genetics Network (NCC) is proud to host Public Health Genetics Week (PHGW)! The … More →

Medical Necessity Webinar Series

The Catalyst Center and the National Coordinating Center for the Regional Genetics Networks, two programs supported by the Health Resources and Services Administration, are pleased to announce a three-part webinar … More →

2022 SERN/SERGG Annual Meeting

The 2022 Annual Meeting will be held in Asheville, NC. We are now accepting abstracts for the SERN/SERGG Annual Meeting, July 14-16, 2022, at the Marriott Renaissance Hotel in Asheville, North Carolina! … More →

April – June 2022 Quarterly Newsletter

Telemedicine Tips for Patients and Families/Caregivers

This is a guide to help you prepare for your telemedicine appointment with your provider. Your provider may have additional requirements for you that are not listed in the document. … More →

Healthcare Interpreter Resources

Are you looking for a healthcare interpreter to provide medical interpretation for your patients? Here is a list of professional healthcare interpreter organizations for states in the southeastern region. Alabama … More →

Pathway to Newborn Screening Facilitated by Collaborations with a Parent Organization A Case Scenario: GAMT Deficiency

As a part of the SERN Lunch and Learn series, Heidi Wallis and Marzia Pasquali, PhD, FACMG discussed how they collaborated to have GAMT (guanidinoacetate N-methyltransferase) Deficiency recommended for being … More →

January – March 2022 Quarterly Newsletter

Interpreting for Pediatric Genetics

A Workshop for Interpreters in Healthcare   Join us for a FREE seven-hour virtual training (led by nationally recognized trainer Cynthia E. Roat, MPH) to help you better understand and … More →

Author Talk – Genomics: A Revolution in Health and Disease Discovery

Network of the National Library of Medicine (NNLM) All of Us National Program hosts the Genomics Author Talk on Genomics: A Revolution in Health and Disease Discovery. Join us for … More →

October-December 2021 Quarterly Newsletter

Welcome to the inaugural issue of the Southeast Regional Genetics Network (SERN) newsletter. SERN is one of seven HRSA-funded regional projects in the US, designed to enhance and support the genetics … More →

2021 SC Telehealth Pioneer Award

  Congratulations to Michael Lyons, MD, Director of Clinical Services at the Greenwood Genetic Center (GGC), who has been named the 2021 Telehealth Pioneer by Palmetto Care Connections. The award … More →

January 2022 SERN Lunch and Learn

SERN will be hosting our next Lunch and Learn on Friday, January 28 at 12 pm ET via Zoom. Register online to watch live or to receive the link to … More →