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Federal Legislation Updates | News

There have been a few pieces of federal legislation introduced that may be of interest to you. We have included links to the bill text and professional organization responses (when available) below.

Access to Genetic Counselor Services Act of 2019

Bill Text (here)

Professional Organization Statements/Letters

NSGC (here)

ASHG (here)

ACMG (here)

Ending the Diagnostic Odyssey Act of 2019

Bill Text (Senate: here and House: here)

Advancing Access to Precision Medicine Act

Bill Text (here)

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Rani H Singh PhD, RD, LD

Professor

Emory University

Department of Human Genetics and Pediatrics

404-778-8519

rsingh@emory.edu

Southeast Regional Genetics NetworkAdded
2020-01-15 by Rani Singh PhD, RDN, LD
Last Updated
2020-01-15 by Adrya Stembridge

SERN Highlights
July 2020

A Taste of eGNA: Now Expanding with Project ECHO

A Taste of eGNA: Now Expanding with Project ECHO

The Southeast Regional Genetics Network (SERN) is ready to launch its first Project ECHO platform for genetic disorders. Our first pilot project will focus on a multidisciplinary medical education approach focused on training genetic metabolic providers. We are currently recruiting for the Genetic Nutrition ECHO program which will launch in the fall of 2020. We hosted an ECHO methodology demonstration on Wednesday, April 29 where more than 300 genetic professionals, public health professionals, and other providers registered to learn more about Project ECHO. We had three case presenters from different institutions, active audience participation, and faculty experts who provided recommendations. If you are a genetic professional, currently seeing patients, we would like your help in completing the Genetic Nutrition ECHO Needs Assessment.

In addition, if you are interested in further educational opportunities, you will be directed to complete the Participant Interest Form after completing the needs assessment, which the ECHO team will use to enroll the first trainee cohort for the program and interested members will be provided with more details. For any further questions please contact egna@emory.edu.

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