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Cystic Fibrosis Foundation Consensus Guidelines for Diagnosis of Cystic Fibrosis Webinar - March 28, 2017 | News
Cystic Fibrosis Foundation Consensus Guidelines for Diagnosis of Cystic Fibrosis Webinar - March 28, 2017
Dear Colleagues,
Last month the "Cystic Fibrosis Foundation Consensus Guidelines for Diagnosis of Cystic Fibrosis" were made available on TheJournal of Pediatrics website. We hope you have had the opportunity to read all the articles and learn about the new guidelines. If not, please be sure to read the first article in the Supplement which lists the consensus statements. (click here)
Highlights from this publication will be shared in a webinar on
Tuesday, March 28, at 12 noon ET
Philip Farrell, MD: will discuss the guideline development process and sweat testing
Clement Ren, MD: will examine the differences from previous guidelines and CRMS/CFSPID
Patrick Sosnay, MD: will explain the CFTR2 project and application of genetic data to diagnosis.
To get the most out of this presentation you are encouraged to read the linked guideline and answer 13 pre-webinar case-based questions (click here).  Cases will be discussed during the session and there will be a time to ask questions.
To register for the webinar, click here. Once you've registered, you will receive an email from GoTo meetings with the link to access this webinar. 
For those who are unable to attend, a link to the recorded session will be sent via the listservs and posted with other webinar links on PortCF.
Best regards,
Paula
Paula Lomas, MAS,RN,CCRP
Director, Clinical Communications
Cystic Fibrosis Foundation | National Office
6931 Arlington Road, Suite 200 | Bethesda, MD 20814
plomas@cff.org301-907-2581

Event Details
2017

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When
March 28th, 2017

This event occurs in the past.

What
Conference/Meeting

Host
Cystic Fibrosis Foundation

Contact
Paula Lomas, MAS,RN,CCRP

Where
Cystic Fibrosis Foundation, National Office
6931 Arlington Road, Suite 200 Bethesda, MD 20814
http://cff.org

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Southeast Regional Genetics NetworkAdded
2017-03-07 by Adrya Stembridge
Last Updated
2017-03-07 by Adrya Stembridge

SERN Highlights
October 2018

SERN Lunch and Learn Announcement Wed, October 24th 2018

SERN Lunch and Learn Announcement Wed, October 24th 2018

Please join us on

Wednesday, October 24that 12:00 pm (noon) at the

7th Floor Conference Room

Woodruff Memorial Research Building

101 Woodruff Circle  

for our

SERN Lunch and Learn Series.

A flyer is attached for your review.

Our speaker will be:

Allison Foley, MMSc, CGC

Certified Genetic Counselor

Lysosomal Storage Disease Center

Emory Department of Human Genetics

The title of her presentation is:

“Pompe Disease: Newborn Screening and Georgia Pilot Program Experience.”

Pizza will be provided

Please RSVP by Friday, October 19thto yadadev@emory.edu

Live presentation via internet is available to a limited number of sites.

Email astembr@emory.edu for web reservations.

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