Beginning in 2004, HRSA MCHB funded a series of Regional Collaborative Projects throughout the United States. This funding aimed at overcoming and developing regional approaches to maldistributions of genetics services and expertise within each region. The initial phase of funding lasted three years and was awarded to SERGG, Inc.
In the winter 2006 a five year competitive renewal application was issued. During this time SERGG requested that another institution serve as the applicant agency. Emory University took the responsibility and now serves as the grantee for the cooperative agreement. Award notices were issued in May 2007 and the region received funding for core and priority activities. These activities are solely supported by HRSA and in-kind staff time, where appropriate.
In 2012 a second five year competitive renewal was awarded to Emory University for the continuation of the activities begun in 2006.
In 2016 HRSA announced a three year competitive renewal and a name change from the Regional Genetic and Newborn Screening Services in Region 3 (Regional Genetics Collaborative) to the Regional Genetics Network. In 2017, Emory University received the notice of grant award for continued development of new telemedicine programs, as well as optimization of existing telegenetics programs looking to grow and become more sustainable in the southeast region.
The program intends to improve health equity and health outcomes in individuals with genetic conditions, reduce morbidity and mortality caused by genetic conditions (including congenital and metabolic disorders); and to improve the quality of coordinated and comprehensive genetic services to children and their families.
The purpose of the Southeast Regional Genetics Network is to:
- Link medically underserved populations (based on poverty, rural geographic location, and/or populations that experience health disparities) to genetic services
- Implement quality improvement activities to increase the connection with genetic services for the medically underserved
- Implement evidence-based innovative models of telehealth and/or telemedicine with a focus on clinical genetics outreach
- Provide resources to genetic service providers, public health officials and families.
- Improve coordinated long-term follow-up and delivery of comprehensive genetic services.
Links to this application are available here.
This funding establishes a set of reporting requirements, along with performance metrics, for the region. For additional information about HRSA and its grant opportunities please visit hrsa.gov.
June 29, 2017