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Virgin Islands State Projects
Quick Facts  

Virgin Islands

2013 Population (estimate):  104,737

Yearly birthrate: 1,413

Total Conditions Screened:  35

Clinics and Centers  

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Convention Center Convention CenterUniversity University
Laboratory LaboratoryClinic Clinic
Pharmacy PharmacyPublic Health Public Health
Hospital HospitalMedical Food Company Medical Food Company
Consumer Group Consumer Group

Contacts in Virgin Islands  
  • Arlene Lockridge MD
    Director
    New Born Screening Data System Liaison
    Public Health Manager/Director
  • Mavis Matthew MD, MPH
    NBS Program Contact
    Public Health Manager/Director
  • Darlene A Carty MA
    Organization Representative
    Public Health Manager/Director
  • Gloria Callwood
    Public Health Manager/Director
  • News
    Individuals with Sickle Cell Disease or Inherited Metabolic Disorders who have Successfully Transitioned from Pediatric to Adult Care Needed for Online Survey Participation
    Individuals with Sickle Cell Disease or Inherited Metabolic Disorders who have Successfully Transitioned from Pediatric to Adult Care Needed for Online Survey ParticipationResearch OpportunityResearchers with SERC Medical Home & Transitioning Workgroup and SERC Consumer Alliance are are recruiting individuals ages 25-35 (and/or…

    Limestone Life article highlights PKU (Athens, AL)
    Limestone Life article highlights PKU (Athens, AL) Athens, AL based magazine Limestone Life features an article in their latest edition about Adam and Julie Tucker and their…

    SERC Highlights
    February 2017

    Introducing the NBS Connect patient registry!

    Introducing the NBS Connect patient registry!

    NBS Connect http://nbsconnect.org has been designed as a resource for those affected by certain disorders included in the newborn screening (NBS) panel. Extensive development of the registry will occur via a phased approach. The registry was launched with NBS-PKU Connect for Phenylketonuria, then NBS-MSUD Connect for Maple Syrup Urine Disease. The next phase is now available with. NBS-TYR Connect for Tyrosinemia. Expansion of the registry will continue to include other disorders in the recommended uniform screening panel (RUSP), endorsed by the American College of Medical Genetics (ACMG)

    We encourage patients affected with PKU, MSUD and Tyrosinemia to visit the website at www.nbsconnect.org , register and complete their participant profiles. Participants will have access to disorder specific education materials, information on the latest research and clinical trials, recipes, interactive health tracking systems, “Ask an Expert” tools and more. We hope you will take advantage of the resources provided which will empower you to make more informed healthcare decisions.

    This registry will be an asset both for forming connections between consumers and for building a qualitative database for future research.

    If you have any questions, please email the project manager Yetsa Osara at coordinator@nbsconnect.org.

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