SERN | Southeast NBS & Genetics Regional Collaborative

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Professionals

The Southeast Regional Genetics Network (SERN) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing professionals with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERN.  Below are links to information and resources specific to public health and medical professionals.

Personnel Directory
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
Centers Directory
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
Nutrition Management Guidelines
The Nutrition Guideline project develops nutrition guidelines for the management of genetic metabolic disorders using both evidence-based and consensus-based methods. The completed guidelines will be published on both the SERN and GMDI websites.
electronic Nutrition Genetics Academy
eGNA case conference and journal club are a series of free online educational modules providing evidence-based knowledge about nutrition management for inherited metabolic disorders.
NBS Connect
The Newborn Screening (NBS Connect) patient registry serves as an internet-based support network for parents, guardians, and individuals with inherited metabolic disorders (IMDs). NBS Connect captures and analyzes information related to IMDs in an effort to assess gaps in service, access to care and to develop best standards of practice for clinical management and connect families to research opportunities. NBS Connect strives to improve the quality of care of individuals with IMDs.
Video Presentations
Selected video presentations from Lunch and Learn series and SERN conferences.

Last Modified: Jun 16, 2017

News
FDA permits marketing of first newborn screening system for detection of four, rare metabolic disorders
FDA permits marketing of first newborn screening system for detection of four, rare metabolic disorders FDA News Release The U.S. Food and Drug Administration today permitted marketing of the Seeker System for the screening of…

National PKU Awareness Day: December 3, 2017
National PKU Awareness Day: December 3, 2017The first National PKU Awareness Day, December 3, 2012, was established by a Congressional Resolution introduced by two U.S. Senators…

Limestone Life article highlights PKU (Athens, AL)
Limestone Life article highlights PKU (Athens, AL) Athens, AL based magazine Limestone Life features an article in their latest edition about Adam and Julie Tucker and their…

SERN Events
<< << June 2018 >> >>
S M T W T F S

SERN Highlights
June 2018

2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NC

2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NC

The next annual SERN/SERGG meeting will be held July 19-21, 2018 at Renaissance Asheville Hotel in Asheville, NC.

More information available on the SERGG website: http://sergg.org/

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