SERN | Southeast NBS & Genetics Regional Collaborative

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Professionals

The Southeast Regional Genetics Network (SERN) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing professionals with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERN.  Below are links to information and resources specific to public health and medical professionals.

Personnel Directory
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
Centers Directory
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
SERN-DISCUSSION Mailing List
For discussion of genetics-related topics, with emphasis on the Southeast (Region 3) area. All are welcome to join and participate. Subscribe here.
Sample Exchange
The sample exchange is a peer-to-peer anonymous sample sharing program aimed at improving regional knowledge about TMS screened conditions and local data harmonization within the region; and evaluating the degree of analytical correlation between laboratories. Due to the sensitive nature of this program, only approved users have access to the database. If you are unable to gain access and believe that this is an error, please contact the system administrator for assistance.
Diagnostic Lab Test Data
The Diagnostic Lab test database is designed to help patients and clinicians in the southeast region find diagnostic laboratory services. We hope that by adding this to Southeast Regional Genetics Network, it gives patients a single resource for testing service sand helps them find labs in the event of a personal or general disaster. We also hope this information will help with general disaster planning.
SERN-ANNOUNCEMENT Mailing List
Join and be informed of upcoming events, news and other pertinant information. Low volume mailing list. Subscribe here.
Nutrition Guidelines Portal
The Nutrition Guideline project develops nutrition guidelines for the management of genetic metabolic disorders using both evidence-based and consensus-based methods. The completed guidelines will be published on both the SERN and GMDI websites.
Medical Foods Survey
The Medical Foods Survey was created to assess the gaps in legislation for coverage of medical foods (formula), modified low-protein foods, and nutraceuticals across the US, as well as other methods of coverage used in each state. Methods of obtaining these items and detailed statements of exclusions of coverage were also collected. This data was gathered through phone interviews with state representatives and clinicians and has been summarized in the regional and state summary sheets.
State Genetics Plans
Information about Region 3 state genetics plans.
Publications
List of publications generated through SERN activities.
Video Presentations
Selected video presentations from Lunch and Learn series and SERN conferences.
Nutrition Symposium
Summary of the annual Nutrition Symposium.

Last Modified: Jun 16, 2017

News
Tyrosinemia Type I: Making Connections Count - Meeting Agenda
Tyrosinemia Type I: Making Connections Count - Meeting AgendaThe Tyrosinemia Type I: Making Connections Count Meeting will be held in Atlanta, GA from May 25th-May 26th, 2017.The meeting…

Meeting Announcement: Advisory Committee on Heritable Disorders in Newborns and Children - May 11-12, 2017
Meeting Announcement:  Advisory Committee on Heritable Disorders in Newborns and Children - May 11-12, 2017Announcement: The next meeting for the Advisory Committee on Heritable Disorders in Newborns and Children will be held in-person and…

New RTI International Program to Offer Free Elective Genetic Testing for North Carolina Newborns
New RTI International Program to Offer Free Elective Genetic Testing for North Carolina Newborns RESEARCH TRIANGLE PARK, NC - A new program offering free elective genetic testing for newborns, developed at RTI International, will…

SERN Events
<< << July 2017 >> >>
S M T W T F S

SERN Highlights
July 2017

2017 Annual Meeting for SERN/SERGG - July 20-22 in Asheville, NC

2017 Annual Meeting for SERN/SERGG - July 20-22 in Asheville, NC

The next annual SERC/SERGG meeting will be held July 20-22, 2017 at Renaissance Asheville Hotel in Asheville, NC.

More information available on the SERGG website: http://sergg.org/

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