The resources provided below have been developed and included to assist consumers and their guardians in negotiating genetics services within the southeast region and beyond.
Southeast NBS & Genetics Collaborative Resources
Southeast NBS & Genetics Collaborative Directory The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
Medical Foods Coverage Survey The Medical Foods Survey was created to assess the gaps in legislation for coverage of medical foods (formula), modified low-protein foods, and nutraceuticals across the US, as well as other methods of coverage used in each state. Methods of obtaining these items and detailed statements of exclusions of coverage were also collected.
External Resources
Multimedia
Web Links
A Parent's Guide to Newborn Screening
In a gentle, warm and supportive context, A Parent's Guide to Newborn Screening explains what newborn screening is, its purpose, the test procedure, and what parents need to do if retesting is necessary:
Southeast NBS & Genetics Collaborative Directory
Medical Foods Coverage Survey
