The Southeast Newborn Screening & Genetics Regional Collaborative (SERC) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders. Providing patients and families with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERC. Below are links to information and resources specific to patients with genetic disorders and their families.
A Parent's Guide to Newborn Screening
In a gentle, warm and supportive context, A Parent's Guide to Newborn Screening explains what newborn screening is, its purpose, the test procedure, and what parents need to do if retesting is necessary:
A Parents Guide to Newborn Screening
Una guoa para pacientes sobre las pruebas
de diagnostico para los recion nacidos
Brought to you by:
For more information contact the March of Dimes.
Affordable Care Act
The Affordable Care Act was passed by Congress and then signed into law by the President on March 23, 2010.
On June 28, 2012 the Supreme Court rendered a final decision to endorse the health care law.
The Affordable Care Act is a federal statute aimed at decreasing the number of uninsured Americans and reducing the overall costs of health care. Many of its provisions significantly impact children and youth with special health care needs, a population important to the purpose of the Southeast Regional NBS & Genetics Collaborative.
Please click on the links below for additional information.
Side-by-side comparison of major provisions and the implications for children and youth with special health care needs
Clickable state information
June 24 - 29
2013 Emory Metabolic Camp Brochure
2012 Emory Metabolic Camp Brochure
Camp Cook Flyer
Camp Cook Application
Recipe for Survival article (Emory Magazine)
SERC is proud to be partnered with
Last Modified: May 23, 2013
Patient and Family Events
SERC Consumer Highlights
Consumer Highlight: Melissa Perez
Melissa Perez, a.k.a. Mom on a Mission, was introduced to the PKU community in 2005 with the addition of her second child, Mayer, who was diagnosed with PKU. Like most parents she spent the first couple of years learning what was needed in order to keep her son healthy. It wasn’t until the spring of 2008, when Florida State Legislators tried to decimate the budget for all of the Regional Genetic Treatment Centers that Melissa realized she would become an advocate for PKU and the metabolic community. Her family promptly jumped into action along with other Florida PKU families and friends and persuaded Legislators to reverse their original proposal to wipe out all necessary funding to treat Florida’s PKU patients and restore the budget to 100%. That was when Melissa decided to commit herself to the PKU world of advocacy. She has since kept up with State Legislation and has even taken her family to Washington DC to meet with members of Congress in hopes of gaining National support necessary to make positive change. Melissa graduated with a degree in Marketing and Communications from Belmont Abbey College, Belmont North Carolina. She has had a fast and remarkable career in advertising and is now enjoying her time with her family, advocating when necessary, and involves herself with a local non profit in Tallahassee, Florida, were she and her family live. She and her husband Mark dedicate themselves to teaching their daughter Clara, and their son Mayer, that they are heroes by participating in the fight to make life better for others.