SERN | Southeast NBS & Genetics Regional Collaborative

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Patients and Families (ver2)

The Southeast Newborn Screening & Genetics Regional Collaborative (SERC) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing patients and families with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERC.  Below are links to information and resources specific to patients with genetic disorders and their families. 


Consumer Alliance
Workgroup

Consumer Alliance
Mailing List

Genetic Disorders

News and Events
 

Centers Directory

Personnel Directory

Medical Foods Survey

Volunteer Opportunities
 

Annual Meeting
 
A Parent's Guide to Newborn Screening

In a gentle, warm and supportive context, A Parent's Guide to Newborn Screening explains what newborn screening is, its purpose, the test procedure, and what parents need to do if retesting is necessary:

A Parents Guide to Newborn Screening

Una guoa para pacientes sobre las pruebas
de diagnostico para los recion nacidos

Brought to you by:

For more information contact the March of Dimes.

Affordable Care Act

The Affordable Care Act was passed by Congress and then signed into law by the President on March 23, 2010.

On June 28, 2012 the Supreme Court rendered a final decision to endorse the health care law.

The Affordable Care Act is a federal statute aimed at decreasing the number of uninsured Americans and reducing the overall costs of health care. Many of its provisions significantly impact children and youth with special health care needs, a population important to the purpose of the Southeast Regional NBS & Genetics Collaborative.

Please click on the links below for additional information.

Side-by-side comparison of major provisions and the implications for children and youth with special health care needs

Clickable state information

CHIP program

 

SERN is proud to be partnered with
Genetic Alliance

Last Modified: Jul 2, 2013

News
Tyrosinemia Type I: Making Connections Count - Meeting Agenda
Tyrosinemia Type I: Making Connections Count - Meeting AgendaThe Tyrosinemia Type I: Making Connections Count Meeting will be held in Atlanta, GA from May 25th-May 26th, 2017.The meeting…

Meeting Announcement: Advisory Committee on Heritable Disorders in Newborns and Children - May 11-12, 2017
Meeting Announcement:  Advisory Committee on Heritable Disorders in Newborns and Children - May 11-12, 2017Announcement: The next meeting for the Advisory Committee on Heritable Disorders in Newborns and Children will be held in-person and…

New RTI International Program to Offer Free Elective Genetic Testing for North Carolina Newborns
New RTI International Program to Offer Free Elective Genetic Testing for North Carolina Newborns RESEARCH TRIANGLE PARK, NC - A new program offering free elective genetic testing for newborns, developed at RTI International, will…

Patient and Family Events
<< << July 2017 >> >>
S M T W T F S

SERN Consumer Highlights
July 2017

Consumer Highlight: Jodi Kotrady-Hatin

Consumer Highlight: Jodi Kotrady-Hatin

Jodi Kotrady-Hatin lives in St. Augustine, Florida with her husband Joe and their two daughters Harlow (8 years old) and Hailey (4 years old). The Hatin Family became very involved in the PKU Community when their youngest daughter Hailey was born in May of 2006 and was diagnosed with Classic PKU (CPKU).

  In 2008, Jodi found herself becoming even more of an advocate and involved in Tallahassee politics when Florida was considering a cut of the budget that impacts Newborn Screening and Regional Genetics. She and fellow Mom Melissa Perez along with Heather Stalker and Penny Porch from UF Shands Genetics Department traveled to Tallahassee and talked to everybody that would talk with them on the importance of Newborn Screening and the need for the genetics clinics etc. At the end of the day they were successful in saving the budget for Regional Genetics.   Jodi has made it her lifetime mission to continue to advocate for Hailey and other children or patients like her. She plans on teaching her daughters how to do the same. Jodi is very involved in many organizations for the cause. She is a member of SERC where she represents Florida Consumers. She is also a board member of Florida PKU. She is a member of National PKU Alliance and attends many meetings that take place on educating the PKU Community. She also stays very involved in politics at a local, state and federal level where she is and always will be an advocate for the PKU Community. This community spans out to other disorders as well.    Jodi’s background has been a career in financial services for approximately 14 plus years. She worked for many years at Merrill Lynch where for 10 years she worked as a Financial Advisor. Jodi’s passion for advocacy and genetics has motivated her to now go back to school where it is her personal goal to become a Registered Nurse and ideally one day work in pediatrics possibly even genetics. Jodi currently holds a B.A. from the University of North Florida.   Jodi is very involved in her local community as well. She served on The Arc of the St. Johns Board for 9 years. She is a board member an active Rotarian in the St. Augustine Rotary Club. She also serves on the finance committee of her church, St. Anastasia Catholic Church and she also serves on the board of The Dance Company, where her two daughters are very involved in the art of dance.    

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