SERC | Southeast NBS & Genetics Regional Collaborative

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Patients and Families (ver2)

The Southeast Newborn Screening & Genetics Regional Collaborative (SERC) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing patients and families with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERC.  Below are links to information and resources specific to patients with genetic disorders and their families. 


Consumer Alliance
Workgroup

Consumer Alliance
Mailing List

Genetic Disorders

News and Events
 

Centers Directory

Personnel Directory

Medical Foods Survey

Volunteer Opportunities
 

Annual Meeting
 
A Parent's Guide to Newborn Screening

In a gentle, warm and supportive context, A Parent's Guide to Newborn Screening explains what newborn screening is, its purpose, the test procedure, and what parents need to do if retesting is necessary:

A Parents Guide to Newborn Screening

Una guoa para pacientes sobre las pruebas
de diagnostico para los recion nacidos

Brought to you by:

For more information contact the March of Dimes.

Affordable Care Act

The Affordable Care Act was passed by Congress and then signed into law by the President on March 23, 2010.

On June 28, 2012 the Supreme Court rendered a final decision to endorse the health care law.

The Affordable Care Act is a federal statute aimed at decreasing the number of uninsured Americans and reducing the overall costs of health care. Many of its provisions significantly impact children and youth with special health care needs, a population important to the purpose of the Southeast Regional NBS & Genetics Collaborative.

Please click on the links below for additional information.

Side-by-side comparison of major provisions and the implications for children and youth with special health care needs

Clickable state information

CHIP program

 

Metcamp 2013
June 24 - 29
Atlanta, GA

2013 Emory Metabolic Camp Brochure

 

Metcamp 2012

2012 Emory Metabolic Camp Brochure

Camp Cook Flyer

Camp Cook Application

 

Metcamp articles

Recipe for Survival article (Emory Magazine)

SERC is proud to be partnered with
Genetic Alliance

Last Modified: May 23, 2013

News
Tyrosinemia Type I: Making Connections Count - Meeting Agenda
Tyrosinemia Type I: Making Connections Count - Meeting AgendaThe Tyrosinemia Type I: Making Connections Count Meeting will be held in Atlanta, GA from May 25th-May 26th, 2017.The meeting…

Meeting Announcement: Advisory Committee on Heritable Disorders in Newborns and Children - May 11-12, 2017
Meeting Announcement:  Advisory Committee on Heritable Disorders in Newborns and Children - May 11-12, 2017Announcement: The next meeting for the Advisory Committee on Heritable Disorders in Newborns and Children will be held in-person and…

New RTI International Program to Offer Free Elective Genetic Testing for North Carolina Newborns
New RTI International Program to Offer Free Elective Genetic Testing for North Carolina Newborns RESEARCH TRIANGLE PARK, NC - A new program offering free elective genetic testing for newborns, developed at RTI International, will…

Patient and Family Events
<< << May 2017 >> >>
S M T W T F S

SERC Consumer Highlights
May 2017

Consumer Highlight: Kristen Vanags

Consumer Highlight: Kristen Vanags

Kristen Vanags is a dedicated mother and champion of PKU causes.   Kristen is the co-founder and president of Georgia PKU Connect, a non-profit focused on supporting the Phenylketonuria community in Georgia.  She became interested in developing a support network shortly after her son’s PKU diagnosis in 2006.  Kristen also has a passion to drive change at a national level to ensure access to treatment for all individuals with PKU. 

A native of Nyack, NY, Kristen received her Bachelors of Industrial Design at the Georgia Institute of Technology.   Prior to the birth of her first child in 2003, Kristen was a program manager for Accenture.  She currently lives in suburban Atlanta with her husband and two children.  

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