SERN | Southeast NBS & Genetics Regional Collaborative

Like us on Facebook! Follow SERC_Genetics on Twitter Subscribe to our RSS Feed
Login | Contact Us

Patients and Families (ver2)

The Southeast Newborn Screening & Genetics Regional Collaborative (SERC) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing patients and families with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERC.  Below are links to information and resources specific to patients with genetic disorders and their families. 


Consumer Alliance
Workgroup

Consumer Alliance
Mailing List

Genetic Disorders

News and Events
 

Centers Directory

Personnel Directory

Medical Foods Survey

Volunteer Opportunities
 

Annual Meeting
 
A Parent's Guide to Newborn Screening

In a gentle, warm and supportive context, A Parent's Guide to Newborn Screening explains what newborn screening is, its purpose, the test procedure, and what parents need to do if retesting is necessary:

A Parents Guide to Newborn Screening

Una guoa para pacientes sobre las pruebas
de diagnostico para los recion nacidos

Brought to you by:

For more information contact the March of Dimes.

Affordable Care Act

The Affordable Care Act was passed by Congress and then signed into law by the President on March 23, 2010.

On June 28, 2012 the Supreme Court rendered a final decision to endorse the health care law.

The Affordable Care Act is a federal statute aimed at decreasing the number of uninsured Americans and reducing the overall costs of health care. Many of its provisions significantly impact children and youth with special health care needs, a population important to the purpose of the Southeast Regional NBS & Genetics Collaborative.

Please click on the links below for additional information.

Side-by-side comparison of major provisions and the implications for children and youth with special health care needs

Clickable state information

CHIP program

 

SERN is proud to be partnered with
Genetic Alliance

Last Modified: Jul 2, 2013

News
SERN Lunch and Learn available for viewing:
SERN Lunch and Learn available for viewing: We are proud to announce the availability of our latest Lunch and Learn series with Dr. Matt Hawkins.   Today's talk…

2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NC
2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NCThe next annual SERC/SERGG meeting will be held July 19-21, 2018 at Renaissance Asheville Hotel in Asheville, NC.   More information available on…

Limestone Life article highlights PKU (Athens, AL)
Limestone Life article highlights PKU (Athens, AL) Athens, AL based magazine Limestone Life features an article in their latest edition about Adam and Julie Tucker and their…

Patient and Family Events
<< << November 2017 >> >>
S M T W T F S

SERN Consumer Highlights
November 2017

Limestone Life article highlights PKU (Athens, AL)

Limestone Life article highlights PKU (Athens, AL)

Athens, AL based magazine Limestone Life features an article in their latest edition about Adam and Julie Tucker and their daughter who is diagnosed with PKU: Local Mom Works to Generate Support for Rare Disorder

Home | About | Contact Us
© 2006-2017   —   SOUTHEAST REGIONAL GENETICS NETWORK   —   A HRSA SUPPORTED PARTNERSHIP   —   GRANT #UH7MC30772