SERN | Southeast NBS & Genetics Regional Collaborative

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Resources for Patients and Families

The Southeast Regional Genetics Network (SERN) is a federally-funded initiative dedicated to improving the health and quality of life of individuals with heritable disorders.  Providing patients and families with up-to-date, relevant information about newborn screening (NBS) and genetics is an important goal of SERC.  Below are links to information and resources specific to patients with genetic disorders and their families. 

Consumer Alliance

Consumer Alliance
Mailing List

Genetic Disorders

News and Events

Centers Directory

Personnel Directory

Medical Foods Survey

Volunteer Opportunities

Annual Meeting
A Parent's Guide to Newborn Screening

In a gentle, warm and supportive context, A Parent's Guide to Newborn Screening explains what newborn screening is, its purpose, the test procedure, and what parents need to do if retesting is necessary:

A Parents Guide to Newborn Screening

Una guoa para pacientes sobre las pruebas
de diagnostico para los recion nacidos

Brought to you by:

For more information contact the March of Dimes.

Affordable Care Act

The Affordable Care Act was passed by Congress and then signed into law by the President on March 23, 2010.

On June 28, 2012 the Supreme Court rendered a final decision to endorse the health care law.

The Affordable Care Act is a federal statute aimed at decreasing the number of uninsured Americans and reducing the overall costs of health care. Many of its provisions significantly impact children and youth with special health care needs, a population important to the purpose of the Southeast Regional NBS & Genetics Collaborative.

Please click on the links below for additional information.

Side-by-side comparison of major provisions and the implications for children and youth with special health care needs

Clickable state information

CHIP program


SERN is proud to be partnered with
Genetic Alliance

Last Modified: Jul 2, 2013

PKU Lunch and Learn with SERN - January 31 at 12pm EDT - Limited WebEx slots available
PKU Lunch and Learn with SERN - January 31 at 12pm EDT - Limited WebEx slots availablePlease join us Tomorrow, January 31stat 12:00 pm (noon) at the Emory Conference Center Hotel Azalea room (Lunch Buffet from 11:30a-12:00p in the…

Tasting Tradition Discussion Panel - Free webinar on PKU diet and meal planning
Tasting Tradition Discussion Panel - Free webinar on PKU diet and meal planningDear PKU Community, On Tuesday, December 19th at 12 PM EST, Baby's First Test is hosting a discussion panel on newborn…

National PKU Awareness Day: December 3, 2017
National PKU Awareness Day: December 3, 2017The first National PKU Awareness Day, December 3, 2012, was established by a Congressional Resolution introduced by two U.S. Senators…

Patient and Family Events
<< << March 2018 >> >>

SERN Consumer Highlights
March 2018

Consumer Highlight: Millie Terry

Consumer Highlight: Millie Terry

Millie is a 19 year-old college sophomore from Centreville, Alabama. She is an active Baptist church member and teaches a preschool discipleship training class. She also teaches baton. She enjoys hiking, mountain biking, and other outdoor activities. Her future career goal is to become a metabolic dietitian. She has always enjoyed helping others. Millie is hopeful that she will be able to empower those with dietary restrictions to overcome their daily challenges which hinder compliance with their regime.     

Millie has classical PKU and has been on a low-protein diet her entire life. She believes that the low- protein diet, although sometimes challenging, is definitely necessary and its benefits are worth the effort.  

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