SERN | Southeast NBS & Genetics Regional Collaborative

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Consumer Alliance
National PKU Alliance: Schedule In-District Meetings NOW!
Schedule In-District Meetings NOW! Members of Congress will be working locally May 28 -…
May 24th, 2018

Overview

The Southeast Regional Genetics Network (SERN) Consumer Alliance is a working group of passionate parents, patients, caregivers, and advocates across the Southeast that represent an array of rare genetic disorders. This group has participation from Alabama, Florida, Georgia, Louisiana, Mississippi, North Carolina, South Carolina, Tennessee, Puerto Rico, and the US Virgin Islands. Since its inception in 2007, the Consumer Alliance has focused on diversifying our representation and strengthening our leadership in each state. Our areas of focus include: advocacy, caregiver support, genetic testing, newborn screening awareness, and emergency preparedness. 

Membership

Florida

Melissa Perez

Jodi Kotrady-Hatin

Linda Starnes

Tennessee

Jessica Stack

Alabama

Julie Tucker

Georgia

Kristen Vanags

Shiela Ryan

South Carolina

Amber Miliote

North Carolina

Frances Beasley, Chair

Brittany Labore

Louisiana

Jackie Parker

Shannon Holland

Mississippi

Shannah Hudson

Puerto Rico

US Virgin Islands

SERN Highlights
June 2018

2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NC

2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NC

The next annual SERN/SERGG meeting will be held July 19-21, 2018 at Renaissance Asheville Hotel in Asheville, NC.

More information available on the SERGG website: http://sergg.org/

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