The sample exchange is a peer-to-peer anonymous sample sharing program aimed at improving regional knowledge about TMS screened conditions and local data harmonization within the region; and evaluating the degree of analytical correlation between laboratories. Due to the sensitive nature of this program, only approved users have access to the database. If you are unable to gain access and believe that this is an error, please contact the system administrator for assistance.
Southeast Genetics states participate with the Region 4 TMS data analysis and analyte cutoff project. Entering data via this web-based portal will permit additional region specific analysis and facilitate our participation with Region 4 by aggregating data in one central location. The region specific portion of the database will collect information beyond TMS screened cases. For additional information regarding this database please contact us.
The Diagnostic Lab test database, led by Tim Wood, PhD,is designed to serve patients and clinicians in the southeast region.We hope that by adding this to Southeast NBS & Genetics Collaborative, it gives patients a single resource for testing service sand helps them find labs in the event of a personal or general disaster. We also hope this information will help with general disaster planning. For more information, or to add or update information please contact Tim Wood at tim@ggc.org
The regional directory of genetics and other related services provides comprehensive regional information about genetics services available within the region. This searchable database holds information for consumers, clinicians, and researchers.
The Medical Foods Survey was created to assess the gaps in legislation for coverage of medical foods (formula), modified low-protein foods, and nutraceuticals across the US, as well as other methods of coverage used in each state. Methods of obtaining these items and detailed statements of exclusions of coverage were also collected. This data was gathered through phone interviews with state representatives and clinicians and has been summarized in the regional and state summary sheets.
The Nutrition Guideline project develops nutrition guidelines for the management of genetic metabolic disorders using both evidence-based and consensus-based methods. The completed guidelines will be published on both the SERC and GMDI websites.
