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2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NC | News
The next annual SERN/SERGG meeting will be held July 19-21, 2018 at Renaissance Asheville Hotel in Asheville, NC.

More information available on the SERGG website: http://sergg.org/

2017 Annual Meeting for SERN/SERGG - July 20-22 in Asheville, NC

Event Details
2018

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When
July 19thJuly 21st, 2018

What
Conference/Meeting

Host
SERN/SERGG

Contact
Mary Rose Simpson @ SERGG and Yetsa Osara @ SERN

Where
Renaissance Asheville Hotel
Asheville, North Carolina
http://sergg.org

Calendar

July 2018
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Southeast Regional Genetics NetworkAdded
2017-10-16 by Adrya Stembridge
Last Updated
2018-06-27 by Adrya Stembridge

SERN Highlights
July 2018

National PKU Alliance: Schedule In-District Meetings NOW!

Schedule In-District Meetings NOW!

Members of Congress will be working locally May 28 - June 1. Please schedule a meeting with them in your home state to discuss the Medical Nutrition Equity Act (Senate Bill: S. 1194 and House Bill: H.R. 2587). Asking for their support and co-sponsorship locally is KEY. Did you know Senator Grassley agreed to co-lead the MNEA with Senator Casey after a local meeting with two PKU grandparents? He did! Local meetings make a difference. Don't delay, WE NEED YOUR HELP!

Scheduling a meeting is easy! Check out the NPKUA Medical Nutrition Equity Act page for step-by-step instructions. You can also go directly to our phone scripts by selecting the links below.

YOU CAN DO IT!

Help the NPKUA keep a pulse on advocacy activities across the country. Please email katrina.swenson@npkua.org to let us know about your appointments. We can also connect you with other advocates in your area!

What do I do if I'm told my Representative or Senators do not have appointments available? Let the scheduler know this issue is very important to you and you would like to meet with a local staff member responsible for healthcare legislation in the next several weeks.

Need more bill info and materials to share with your U.S. Representative and Senators? Visit the NPKUA Medical Nutrition Equity Act page!

Have questions? We have answers! Email us!

About the Medical Nutrition Equity Act

If passed by Congress and signed into law, the MNEA would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs to provide coverage for formulas, low protein modified foods, and prescribed vitamins for all children and adults with inborn errors of metabolism and certain digestive disorders.

Thank you for your participation!

National PKU Alliance, Inc. | P.O. Box 1872 | Eau Claire, WI 54702

katrina.swenson@npkua.org | http://www.npkua.org

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