-
Translating research into practical health care services and systems to improve the health and quality of life of individuals with heritable disorders through Collaboration and Partnership.
-
2012 SERC/SERGG Annual Meeting - July 19-21 in Ponte Vedra Beach, FL. Details here. 
-
2012 Nutrition Guidelines Nominal Group Meeting
-
2011 Nutrition Symposium Participants. Find out more about the Emory University Department of Human Genetics Nutrition Symposium
-
Lunch & Learn presentation with Tim Wood. February 2011.
-
-
2011 Metabolic Camp pool party
| News and Events |
|
Kevin Alexander's Story - An Intimate Chat with a PKU Patient  Kevin Alexander, a PKU patient and videographer, shares his successes and stresses the importance of newborn screening and adherence to proper diet and availability of medical foods in this intimate video. You can be an advocate for medical food coverage by emailing essentialhealthbenefits@cms.hhs.gov and let them know why access to medical…
Congratulations Kristen,2011 Applied Nutrition ROSE Award Winner!
Congratulations to our very own Kristen Vanags for winning the Applied Nutrition Rose Award for outstanding service in the PKU Community!
Kristen has demonstrated outstanding leadership within the PKU community as President and founding member of Georgia PKU Connect and as an active member of the NPKUA Advocacy Committee.
We are proud…
HHS Update: Take Action Now! The future of medical food coverage (formula and foods modified to be low in protein) is now at risk. We need you to Take Immediate Action!
In December, 2011, the Department of Health and Human Services (HHS) issued a “pre-rule bulletin” announcing its decision to offer “flexibility” to the states…
Read All News and Events |
|
| Resources and Activities - Click a State |
|
|
|
|
|
Patients & Families
Find disorder specific information as well as other resources for patients and families.
|
|
Professionals
Resources for health care and public health professionals interested in newborn screening (NBS) & genetics.
|
Featured Content
January 2012
SERC Emergency Preparedness Session
In collaboration with the Association of Public Health Laboratories (APHL), the Southeast Regional NBS & Genetics Collaborative (SERC) hosted a special Emergency Preparedness Workshop for NBS Laboratories on July 20th, 2011. Led by William Perry - SERC’s Emergency Preparedness Consultant and Patrick Hopkins of the Missouri State NBS Laboratory, the session was attended by representatives from every state in the Southeast Region. The Workshop included presentations on emergency preparedness planning at the state laboratory level, with real-life examples of past events and the use of the Emergency Management Assistance Compact (EMAC) system as a mechanism of organizing an emergency response. In addition, Workshop attendees participated in a hazards assessment with discussions of the “Most Likely” and the “Most Significant” events that would threaten individual state laboratory operations, the logistics of providing backup services to other state laboratories in an emergency, and strategies for a regional emergency preparedness framework. Overall, the participants viewed the workshop as an important first step in emergency preparedness planning and vowed to continue working with SERC to see to it that a regional emergency preparedness plan becomes a reality.
|
