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21st Annual Metabolic Camp at Emory University (Atlanta, GA)
21st Annual Metabolic Camp at Emory University (Atlanta, GA)Join us June 22-27, 2015 for the 21st Annual Metabolic Camp at Emory University in Atlanta, GA!  This is a model, research-based camp for young women 12 years age and older with PKU and MSUD, which focuses on building social support through a variety of activities including nutrition education, cooking…

Fatty Acid Oxidation Disorders Family Get-Together
Fatty Acid Oxidation Disorders Family Get-TogetherAs part of a HRSA grant initiative, the Southeast Newborn Screening & Genetics Regional Collaborative (SERC) from the Maternal and Child Health Bureau supports activities organized by members of the consumer alliance group. In collaboration with a consumer from the SERC consumer alliance, SERC is pleased to announce an upcoming…

Lunch and Learn: The Telegenetics Experience - January 28, 2015 RSVP today
Please join us for a live presentation via internet available to a limited number of sites or in-person presentation  on Wednesday, January 28th at 12:30 pm in the North Decatur Conference Room for our SERC Lunch and Learn Series. A flyer is attached for your review.   Our speaker will be:   David Flannery, M.D., FACMG Medical Director…

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Patients & Families
Find disorder specific information as well as other resources for patients and families.
Resources for health care and public health professionals interested in newborn screening (NBS) & genetics.
2015 SERC/SERGG Anuual Meeting

Save the Date!
The 2015 SERC/SERGG meeting will be held July 16-18, 2015 at Renaissance Asheville Hotel in Asheville, NC.

Featured Content
January 2015

SERC/GMDI announces Nutrition Management Guidelines for MSUD

SERC/GMDI announces Nutrition Management Guidelines for MSUD

Management Guidelines cover the evaluation, assessment, and management of patients known to have a particular condition. SERC and GDMI partnered to develop nutrition management guidelines based on our rigorous DNDF methodology. The creation of the nutrition management guidelines has been a multi-year project to develop evidence and consensus based guidelines of inborn errors of metabolism (IEM).   This is the first publicly available MSUD guideline to all metabolic dietitians, physicians and other clinicians. The portal utilizes a tool for development of guidelines of genetic metabolic disorders for which there is little published scientific evidence. The practice recommendations are an effort to increase standardization of care and enable outcomes studies within and across centers. When warranted by developments in MSUD research and clinical practice, these guidelines will be updated periodically and will be maintained through a Dynamic process.

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© 2006, 2007, 2009, 2010, 2011, 2012, 2013   —   SOUTHEAST NBS & GENETICS COLLABORATIVE   —   A HRSA SUPPORTED PARTNERSHIP   —   GRANT #H46MC24090