SERN | Southeast NBS & Genetics Regional Collaborative

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    Translating research into practical health care services and systems to improve the health and quality of life of individuals with heritable disorders through Collaboration and Partnership.
  • 2018 SERN/SERGG Annual Meeting - July 19-21 in Asheville, NC. Details here.
    SERN/SERGG 2018 Annual Meeting July 19-21 at Renaissance Asheville Hotel in Asheville, NC
  • 2016 Nutrition Management Guidelines Nominal Group Meeting
    2016 Nutrition Guidelines Nominal Group Meeting
  • 2017 SERN/SERGG Annual Meeting
    Telegenetics Workgroup at 2017 SERN/SERGG Annual Meeting in Asheville, NC.
  • 2018 Metabolic Camp pool party
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  • 2018 Lunch and Learn with Dr. Hilary Feldman
    January 31, 2018 Lunch and Learn with Dr. Hilary Feldman

News and Events  
2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NC
2018 Annual Meeting for SERN/SERGG - July 19-21 in Asheville, NCThe next annual SERN/SERGG meeting will be held July 19-21, 2018 at Renaissance Asheville Hotel in Asheville, NC. More information available on the SERGG website: http://sergg.org/…

Emergency Preparedness Toolkit for Genetic-Based Inherited Metabolic Disorders
Emergency Preparedness Toolkit for Genetic-Based Inherited Metabolic DisordersThe Emergency Preparedness Toolkit for Genetic-Based Inherited Metabolic Disorders was developed by the SERN Consumer Alliance Emergency Preparedness Workgroup. The toolkit includes disorder-specific lists of supplies needed in case of emergency, as well as a general list of basic emergency preparedness supplies. It is available to be printed, posted, and…

FDA permits marketing of first newborn screening system for detection of four, rare metabolic disorders
FDA permits marketing of first newborn screening system for detection of four, rare metabolic disorders FDA News Release The U.S. Food and Drug Administration today permitted marketing of the Seeker System for the screening of four, rare Lysosomal Storage Disorders (LSDs) in newborns. The Seeker system is designed to detect Mucopolysaccharidosis Type I (MPS I), Pompe , Gaucher and Fabry . It is the first…

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