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News and Events  
2017 Annual Meeting for SERC/SERGG - July 20-22 in Asheville, NC
2017 Annual Meeting for SERC/SERGG - July 20-22 in Asheville, NCThe next annual SERC/SERGG meeting will be held July 20-22, 2017 at Renaissance Asheville Hotel in Asheville, NC.More information available on the SERGG website: http://sergg.org/…

Individuals with Sickle Cell Disease or Inherited Metabolic Disorders who have Successfully Transitioned from Pediatric to Adult Care Needed for Online Survey Participation
Individuals with Sickle Cell Disease or Inherited Metabolic Disorders who have Successfully Transitioned from Pediatric to Adult Care Needed for Online Survey ParticipationResearch OpportunityResearchers with SERC Medical Home & Transitioning Workgroup and SERC Consumer Alliance are are recruiting individuals ages 25-35 (and/or their parent or caregiver) who has successfully completed the healthcare transitioning process from pediatric to adult care. This is the first study of its kind using a Delphi survey technique…

Limestone Life article highlights PKU (Athens, AL)
Limestone Life article highlights PKU (Athens, AL) Athens, AL based magazine Limestone Life features an article in their latest edition about Adam and Julie Tucker and their daughter who is diagnosed with PKU: Local Mom Works to Generate Support for Rare Disorder…

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Patients & Families
Find disorder specific information as well as other resources for patients and families.
Professionals
Resources for health care and public health professionals interested in newborn screening (NBS) & genetics.
2016 SERC/SERGG Anuual Meeting

Save the Date!
The 2016 SERC/SERGG meeting will be held July 14-16 at Sawgrass Marriott Hotel in Ponte Vedra Beach, Florida.

Featured Content
January 2017

SERC/GMDI announces Nutrition Management Guidelines for MSUD

SERC/GMDI announces Nutrition Management Guidelines for MSUD

Management Guidelines cover the evaluation, assessment, and management of patients known to have a particular condition. SERC and GDMI partnered to develop nutrition management guidelines based on our rigorous DNDF methodology. The creation of the nutrition management guidelines has been a multi-year project to develop evidence and consensus based guidelines of inborn errors of metabolism (IEM).   This is the first publicly available MSUD guideline to all metabolic dietitians, physicians and other clinicians. The portal utilizes a tool for development of guidelines of genetic metabolic disorders for which there is little published scientific evidence. The practice recommendations are an effort to increase standardization of care and enable outcomes studies within and across centers. When warranted by developments in MSUD research and clinical practice, these guidelines will be updated periodically and will be maintained through a Dynamic process.

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